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Navigating practical and ethical considerations in community-based participation research with marginalized ethnic minorities with lived experience of drug use / Debra O’neill, Comiskey Catherine, Elizabeth A. Curtis.
- Format:
- Book
- Author/Creator:
- O’neill, Debra, author.
- Comiskey, Catherine, author.
- Curtis, Elizabeth A., author.
- Language:
- English
- Subjects (All):
- Community-based research--Moral and ethical aspects--Case studies.
- Community-based research.
- Irish Travellers (Nomadic people)--Substance use--Case studies.
- Irish Travellers (Nomadic people).
- Physical Description:
- 1 online resource
- Place of Publication:
- London : SAGE Publications Ltd, 2026.
- Summary:
- Community participation research with marginalized ethnic minorities with lived and living experience of drug use presents both transformative opportunities and complex challenges. Rooted in principles of equity and inclusion, such research seeks to coproduce knowledge that is respectful, relevant, and empowering. However, it also necessitates careful attention to informed consent, power dynamics, cultural sensitivity, and structural barriers that influence participation and meaningful representation.The research under consideration in this case study is the first national mixed methods study conducted to provide a comprehensive, evidenced-based understanding of the prevalence, needs, and consequences of substance use among the Irish Traveller ethnic community. In addition to the statistical analysis of secondary retrospective national drug treatment data collected under an EU wide protocol, primary qualitative data was collected from Travellers with lived and living experience of drug use (n = 20), stakeholders and service providers (n = 10) and finally Travellers (n = 23) working within the Traveller community.This emerging case study critically explores the practical and ethical considerations researchers must navigate when engaging with similar communities and applying a human rights and a community-based participatory research (CBPR) framework. This case study should be of particular benefit to students of social justice and experienced researchers undertaking complex mixed methods enquires with divergent stakeholders, including national government agencies, nongovernmental peer organizations (with specific political messaging) and vulnerable participating individuals.The aim of this case study is to provide insights which will assist and inform ethically sound and practically feasible community-engaged research with marginalized and vulnerable individuals for the benefit of policy and service transformation.
- Notes:
- Description based on XML content.
- ISBN:
- 9781036247096
- OCLC:
- 1594888963
- Publisher Number:
- T301651
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