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Designing accessible research : a case study on inclusive methods for engaging deaf and hard-of-hearing individuals / Limor Aharonson-Daniel, Carolina Tannenbaum-Baruchi, Paula Feder-Bubis.
- Format:
- Book
- Author/Creator:
- Aharonson-Daniel, Limor, author.
- Tannenbaum-Baruchi, Carolina, author.
- Feder-Bubis, Paula, author.
- Language:
- English
- Subjects (All):
- Hard of hearing people--Research--Methodology--Case studies.
- Hard of hearing people.
- Mixed methods research--Case studies.
- Mixed methods research.
- Physical Description:
- 1 online resource
- Place of Publication:
- London : SAGE Publications Ltd, 2026.
- Summary:
- This case study draws on two original peer-reviewed studies: (1) a qualitative study exploring the lived realities of hearing children of Deaf parents (CODAs) and professionals’ sign language interpreters, and (2) a two-phase mixed-methods study investigating the health-care experiences of Deaf and Hard-of-Hearing (DHH) individuals. The first, a qualitative exploration of CODAs, some also sign language interpreters, identified the “responsibiligated” role—an intertwining of responsibility and obligation—experienced by children navigating dual family and interpreter roles. The second, a mixed-methods national investigation, examined communication barriers to emergency room access, revealing that self-efficacy, rather than degree of hearing loss, was central to independent communication.Using these studies as a foundation, this case demonstrates how to embed accessibility, cultural competence, and cultural humility into every stage of research with marginalized communities. While cultural competence focuses on acquiring knowledge about specific cultural groups, cultural humility is process-oriented, emphasizing ongoing self-reflection, recognition of power differentials, and openness to learning from participants (Lekas, Pahl, & Fuller Lewis, 2020). Accessibility ensures meaningful participation of DHH individuals throughout the research process. Drawing on the principal investigator’s positionality as a CODA, the team adapted the Qualtrics survey platform to include sign language video clips and easy-read formats, and developed interview protocols that allowed participants to choose among multiple communication modalities. These innovations increased participation rates, improved data authenticity, and ensured equitable engagement across the heterogeneous DHH community. Ethical adaptations—such as replacing video recordings with immediate post-interview reconstructions—protected participant privacy while preserving data richness.By reading this case, researchers will learn practical strategies for recruiting underrepresented participants, codesigning linguistically accessible tools, and adapting mixed-methods designs to diverse communication needs. The methods presented are transferable to studies involving other marginalized or linguistically diverse groups. This case offers a replicable model for conducting research that is methodologically rigorous, ethically responsive, and capable of generating richer, more authentic insights.
- Notes:
- Description based on XML content.
- ISBN:
- 9781036247614
- OCLC:
- 1594889480
- Publisher Number:
- T301719
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