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Communicating rare diseases and disorders in the digital age / Liliana Vale Costa, University of Aveiro, Portugal, S�onia Oliveira, University of Aveiro, Portugal.
- Format:
- Book
- Author/Creator:
- Costa, Liliana Vale, author.
- Series:
- Advances in medical technologies and clinical practice book series. 2327-9354
- Advances in medical technologies and clinical practice (AMTCP) book series
- Language:
- English
- Subjects (All):
- Communication in medicine.
- Social media in medicine.
- Medical informatics.
- Physical Description:
- 1 online resource (xxiii, 412 pages) : illustrations (some color), charts.
- Place of Publication:
- Hershey, Pennsylvania : Medical Information Science Reference, [2020]
- System Details:
- Mode of access: World Wide Web.
- Summary:
- "This book explores the use of computer-mediated communication in rare diseases and disorders"-- Provided by publisher.
- Contents:
- Chapter 1. Talking about rare diseases: a compendium on rare diseases and online news
- Chapter 2. Health-related communication and rare diseases: a passport for the patient journey
- Chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases
- Chapter 4. Digital media in rare diseases or "knowledge is power": the role of eurordis in creating awareness and diagnosing rare diseases
- Chapter 5. Public media coverage of rare diseases and disorders: the case of Spanish public broadcasting corporation
- Chapter 6. Representation of patients with rare diseases in Spanish media
- Chapter 7. Networks in rare diseases: identities, partnership, and advocacy in Brazil
- Chapter 8. Challenges of parents with children with rare diseases in Portugal: a relational perspective
- Chapter 9. Neuropsychiatry in late onset tay-sachs disease: key features and possible etiology of psychosis
- Chapter 10. Portraying rare and misdiagnosed diseases in movies: a content analysis, 1980-2018
- Chapter 11. How is the administrator's experience in managing health facebook groups?: the impact of social media in patients with IBD.
- Notes:
- "Premier Reference Source" -- Cover.
- Includes bibliographical references and index.
- Description based on print version record.
- ISBN:
- 9781799820895
- 1799820890
- OCLC:
- 1191045531
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