A research agenda for lived experience and disability policy / edited by Jennifer Smith-Merry (professor of health and social policy, Australian Research Council Industry Laureate Fellow), and Damian Mellifont (lecturer, Centre for Disability Research and Policy, The University of Sydney, Australia).

Format:

Book

Contributor:

Smith-Merry, Jennifer, editor.

Mellifont, Damian, editor.

Edward Elgar Publishing, publisher.

Series:

Elgar research agendas

Language:

English

Subjects (All):

People with disabilities.

Disability studies.

Genre:

Electronic books.

Physical Description:

1 online resource (220 pages)

Place of Publication:

Northampton : Edward Elgar Publishing, 2026.

Summary:

"Elgar Research Agendas outline the future of research in each area. Leading scholars are given the space to explore their subject in provocative ways and map out the potential directions of travel. They are relevant but also visionary. This highly informative Research Agenda examines how lived experiences are understood and incorporated in disability policy. It explores various policymaking contexts, highlighting the opportunities and challenges that derive from centering lived experience. Expert authors pair case studies from across Asia, Australia and North America with theoretical grounding to reorient policy thinking towards voices that have been traditionally excluded. Evaluating topics such as rural contexts, times of conflict and transport and health policy, chapters highlight how the voices of Indigenous populations, in particular, have been marginalised in policymaking. The authors powerfully demonstrate that lived expertise is a unique form of knowledge which should be valued and integral to all disability policy making and research. This is a valuable resource for students and scholars of disability studies, sociology, and policy studies. Its insights into lived experience also make it prime readership for professionals and practitioners in the areas of social policy and social work"-- Provided by publisher.

Contents:

Contents: 1. Introduction: Lived experience and policy making / Jennifer Smith-Merry and Damian Mellifont

2. Centring disabled voices: Inclusion of lived experiences in policy / Sze Hwee Jace Tay and Kuansong Victor Zhuang

3. Re-imagining policymaking with rural people with disability in Australia / Claire Quilliam, Luke Wakely and Jodie Bailie

4. Navigating disability in times of conflict: The case of disability policies in Pakistan / Farman Ali, Zia Ullah Akhunzada and Mandy Lau

5. The multi-layered, multi-faceted importance of the lived experience in disability health policy / Dinesh Palipana and Gisselle Gallego

6. The role of lived experience and the right to participate in the CRDP: The case of disability policymaking in technocratic Singapore / Daryl W. J. Yang

7. Indonesia's digital disability inclusion: From regulation to policymaking and practice / Muhammad Novsyaroni Umar, Galuh Fitri Amalia Susilo and Muhammad Karim Amrullah

8. From experience to policy: The influence of lived experience on disability transport policy in Sydney, Australia / Miguel Loyola and Jennifer Kent

9. What is the problem with private supported boarding houses? Resident perspectives on the Queensland / Parliamentary Inquiry / Elroy Dearn, Neil Turton-Lane and Matilda Alexander

10. The research agenda for assisted dying policy for psychiatric disability / Sam Sam and Jennifer Smith-Merry

11. Decolonising the indigenous disability sciences in Australia and New Zealand / Jemma Chao, Alix Beckett, Sarah Veli-Gold and John Gilroy

12. The good, the bad and the ugly: Accommodations for indigenous Canadian civil servants with disabilities / John T. Ward, Kevin P. Morgan, Lexi (Giizhigokwe) Nahwegiizhic and Annie Smith St-Georges

13. Radical disability disclosure: How to encourage an invisible community to engage in disability policymaking / Tea Rundback

14. Co-producing knowledge to inform policy: A disabled person's reflections on processes, learnings, strengths, and challenges / Susan Wadsworth and Rachelle A. Martin.

Notes:

Description based on print record.

ISBN:

9781035332403 (e-book)

Access Restriction:

Restricted for use by site license.