So Much So Fast / Jeanne Jordan, Steven Ascher.

Format:

Video

Author/Creator:

Jordan, Jeanne, author.

Ascher, Steven, author.

Language:

English

Subjects (All):

Amyotrophic lateral sclerosis.

Physical Description:

1 videorecording (1 hr., 27 min., 00 sec.) : sound, color

Place of Publication:

Pompton Plains, New Jersey : Passion River, 2025.

Language Note:

Closed-captioned in English.

System Details:

video file

Summary:

When, at age 29, Stephen Heywood was diagnosed with amyotrophic lateral sclerosis (ALS) or Lou Gehrig's disease, he knew he had limited time. Within five years of the diagnosis, he married, became a parent, renovated two houses, and inspired his brother Jamie, sister-in-law Melinda, and friend Robert Bonazoli to start on an intensive quest to find better treatment and perhaps even a cure.

Contents:

Chapter 1: Introduction to ALS and the Heywood Family

Chapter 2: Stephen Heywood Marries, Becomes a Parent, and Renovates Two Houses After His ALS Diagnosis

Chapter 3: Jamie Heywood Brings Together a Team of Guerilla Scientists to Form an ALS Foundation

Chapter 4: Stephen Heywood Manages the Progression of ALS While Juggling Parenting and Renovation Responsibilities

Chapter 5: Jamie Heywood Continues to Build and Fundraise for the ALS Foundation

Chapter 6: Stephen Heywood Finds Ways to Continue Communicating

Chapter 7: Jamie Heywood Faces Funding Challenges to Maintain Research

Chapter 8: Stephen and Jamie Heywood Reach the Five-Year Mark in Their ALS Journey.

Participant:

Director, Steven Ascher.

Director, Jeanne Jordan.

Notes:

Description based on publisher supplied metadata and other sources.

ISBN:

1-03-622196-2

9781036221966

OCLC:

1521417969