Patient Involvement in Health Technology Assessment / edited by Karen M. Facey, Anke-Peggy Holtorf, Ann N.V. Single.

Format:

Book

Contributor:

Facey, Karen M., Editor.

Holtorf, Anke-Peggy., Editor.

Single, Ann N.V., Editor.

Series:

Health Informatics, 2197-3741

Language:

English

Subjects (All):

Medical informatics.

Medical care.

Health Informatics.

Health Care.

Local Subjects:

Health Informatics.

Health Care.

Physical Description:

1 online resource (XXXIII, 529 p. 27 illus., 18 illus. in color.)

Edition:

2nd ed. 2026.

Place of Publication:

Cham : Springer Nature Switzerland : Imprint: Springer, 2026.

Summary:

This extensively revised and updated Open Access book offers a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as research into patient aspects (patients’ experiences, preferences, perspectives, needs) and patient participation in HTA (individual HTAs, methods, processes, governance and policy) it includes detailed explanations of methodologies and approaches, as well as case studies. The book begins by introducing HTA and considering the ethics of patient involvement. It then defines the complementary strands of research and participation before providing chapters on key methods including: qualitative evidence synthesis, patient preference studies, ethnographic fieldwork, social media analysis using AI, natural language processing and deep learning, patient-led collaborative research to inform economic modelling, and evaluation of patient involvement. It concludes with carefully selected case studies highlighting specific approaches and considerations among HTA bodies on five continents, health technology developers and patient organisations. With cohesive contributions from more than 120 authors from a variety of disciplines around the globe and most chapters including patient authors, Patient Involvement in Health Technology Assessment concludes with urgent calls to action for this field which has rapidly gained momentum in the past decade. As both a practical manual and academic text, it serves as a source of inspiration for policymakers, practitioners, researchers, patient advocates and postgraduate students around the world who seek to improve HTA by taking account of patients’ knowledge, experiences, needs and preferences.

Contents:

I-Conceptualisation

Health Technology Assessment

Justice as an Ethical Justification for Patient Involvement

Research into Patient Aspects

Patient Participation in HTA

Discussion: Patients’ Role, Representation and Epistemic Justice in HTA

II-Methodologies

Patient-led Collaboration for HTA Tools and Evidence Development: Project HERCULES

Extracting Data on Patient Perspectives from Social Media

Discussion: The Evolving Science of Patient Involvement

Patient Preference Research to Inform HTA

Ethnographic Fieldwork

Qualitative Evidence Synthesis

Evaluation of Patient Involvement in HTA

Discussion: Making Sense of Patients’ Perspectives, Experiences, and Involvement in HTA.

III-Jurisdictional Approaches and Stakeholder Views

Australia: Co-Designing Enhanced HTA Processes with Patients

Belgium: Partnering with Patients for HTA Research

Czechia: Patient Involvement in HTA

England: Continuously Improving Processes for Patient Involvement Throughout HTA

European Union: Patient Involvement Model in HTA Under the European HTA Regulation

Germany: Patient Involvement in HTA

Latin America and the Caribbean: Evolving Approaches to Involving Patients in HTA

The Philippines: Systematising Patient Participation in HTA

Republic of Korea: Tackling Misinformation with Patients in HTA

Singapore: From Stakeholder Mapping to Continuously Improving Patient Participation in HTA

Spain (REDETS): Collaborating on Methodologies for Patient Involvement in HTA

Taiwan: Patient Participation in HTA

USA: Patient Involvement at the Institute for Clinical and Economic Review

Wales: Developing Bespoke Approaches to Patient Involvement in HTA

Perspectives from Low- and Middle-Income Countries on Patient Involvement in HTA

Discussion: Perspective of an HTA Appraisal Committee Chair in France

The Evolving Role Patient Organisations in HTA

Patient Involvement Throughout the Medicine Life Cycle: A Pharmaceutical Industries’ Perspective

Patient Involvement in the Life Cycle of Medical Technology Development

Patient Involvement in HTA – The Journey Continues.

Notes:

Description based on publisher supplied metadata and other sources.

ISBN:

3-032-11284-2

9783032112842

OCLC:

1574807944