Breathe, Baby, Breathe! : Neonatal Intensive Care, Prematurity, and Complicated Pregnancies / Annie Janvier.

Format:

Book

Author/Creator:

Janvier, Annie, Author.

Contributor:

Aronoff, Phyllis

Scott, Howard.

Language:

English

Subjects (All):

Janvier, Annie.

Premature infants--Care.

Premature infants.

Physical Description:

1 online resource (375 pages)

Place of Publication:

Toronto : University of Toronto Press, [2020]

Language Note:

In English.

Summary:

Every year in the United States, 12% of all births are preterm births, 5% of all babies need help to breathe at birth, and 3% of neonates are born with at least one severe malformation. Many of these babies are hospitalized in a neonatal intensive care unit. Annie Janvier and her husband, Keith Barrington, are both pediatricians who specialize in the care of these sick babies and are internationally known for their research in this area. In 2005, when their daughter Violette was born extremely prematurely, 4 months before her due date, they faced the situation "from the other side," as parents. Despite knowing the scientific facts, they knew nothing about the experience itself. "Knowing how a respirator works did not help me be the mother of a baby on a respirator," writes Annie. She did not know how to navigate the guilt, the uncertainty, the fears, the predictions of providers, and the responses of friends and family. In a society obsessed with goals, performance, efficiency, and high percentages, she discovered that the daily lack of control that new parents of sick babies face changes their lives. And that, for physician parents, it also changes the way they practice medicine. Most of the articles and books written about premature babies and neonatal intensive care units examine the technological and medical aspects of neonatology. Breathe, Baby, Breathe, however, is written in the voice of a parent-doctor and tells the story of Violette and her parents, alongside the stories of other fragile babies and their families with different journeys and different outcomes. With the story of Violette at the core of the book, the interwoven stories and empirical articles provide essential insights into the medical world of premature birth. This original clever blend of narratives and evidence provides a new, experiential view of the way forward during a parental crisis. The book ends with practical recommendations for clinicians, parents, and families.

Contents:

Breathe, Baby, Breathe!

Frontmatter

Contents

Foreword

Acknowledgments

Introduction

Part 1: Labour and Prenatal Counselling

The "Perfect Pregnancy" Is a Scam

You Made Your Bed ...

12 May

No Bed of Roses

13 May

15 May, Night

End-of-Life Decisions for Extremely Low-Gestational-Age Infants: Why Simple Rules for Complicated Decisions Should Be Avoided

Difficult Decisions

Naming

19 May

20 May

Personalized Decision Making: Practical Recommendations for Antenatal Counseling for Fragile Neonates

Part 2: The Delivery and the First Days

The Delivery

Memories from Gene Dempsey

23 May

24 May

Half Mother at Home

26 May

30 May

3 June

6 June

7 June

10 June

11 June

13 June

14 June

The Big Berthas

Part 3: The NICU

Dear Violette

Pepperoni Pizza and Sex

17, 18 June

For Audrey-Anne

Shooting Stars

19, 20 June

21 June

Life Trajectories

23 June

Red Underwear

My Love

24 June

26 June

27 June

Other People

4 July

Just Being There

20 July

Part 4: Progress and Setbacks

20 August

22 August

Dear World

Learning to Fall

24 August

31 August

Term MRI for Small Preterm Babies: Do Parents Really Want to Know, and Why Has Nobody Asked Them?

Measuring and Communicating Meaningful Outcomes in Neonatology: A Family Perspective

Part 5: Coming Home

Germ-o-phobia

Meanwhile, with My Other Kids ...

Rewriting Your Life

A Mother's Love

The Backpack: The Sequel

After Violette, Am I a Better Doctor?

Tattoos, Beer, and Bow Ties: The Limits of Professionalism in Medicine

26 September

What's Your Dream?

22 May 2011

Stronger and More Vulnerable: A Balanced View of the Impacts of the NICU Experience on Parents

Survival Guide for Parents

Part 6: Neonatology Information for Parents, Families, Clinicians, and All Those Who Care about Babies

Getting the Bad Stuff Out

Seven Don'ts for Families and Friends Helping Parents

The Best Ways to Help Parents in the NICU

Ethics and Etiquette in Neonatal Intensive Care

Notes

Glossary of Common Abbreviations Used in the NICU

Selected Bibliography

Resources and Further Reading

Notes:

Includes bibliographical references.

Description based on online resource; title from PDF title page (publisher's Web site, viewed 06. Apr 2020)

ISBN:

1-4875-1927-3

1-4875-1926-5

OCLC:

1128823084