The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies / edited by Hanna Bertilsdotter Rosqvist, David Jackson-Perry.

Format:

Book

Contributor:

Jackson-Perry, David, editor.

Bertilsdotter Rosqvist, Hanna, 1976- editor.

Language:

English

Subjects (All):

Social service--Research.

Social service.

Developmental psychology.

Social medicine.

Bioethics.

Social Work Research.

Developmental Disabilities.

Medical Sociology.

Health, Medicine and Society.

Local Subjects:

Social Work Research.

Developmental Disabilities.

Medical Sociology.

Health, Medicine and Society.

Bioethics.

Physical Description:

1 online resource (468 pages)

Edition:

1st ed. 2024.

Place of Publication:

Cham : Springer Nature Switzerland : Imprint: Palgrave Macmillan, 2024.

Summary:

“This is a must-read book for anyone interested in participatory, and neuro-affirmative and neuro-inclusive research.” - Georgia Pavlopoulou, Associate Professor, UCL, and Director of Group for Research in Relationships and NeuroDiversity (GRRAND) “This scholarly, comprehensive and highly readable edited volume is the first of its kind dedicated to research methodology within Neurodiversity Studies.” - Nicola Martin, Professor and Head of Research, Higher Degrees and Student Experience, London South Bank University, UK “A wealth of community-informed expertise on research ethics and methodological innovation that should be required reading for current and future generations of neurodiversity scholars.“ - Kristen Bottema-Beutel, Professor of Special Education, Boston College, USA “Rather than merely talking the talk, the editors and contributors are walking the walk of "nothing about us without us". - Nicole Brown, Associate Professor and Head of Research Ethics and Integrity, Institute of Education, University College London, UK This timely volume brings together well-established scholars and emerging voices to explore research methods and ethics in Neurodiversity Studies. It explores the epistemic injustice that currently surrounds much knowledge production around neurodivergence, and offers concrete examples of creative, participatory, and collaborative research practice in the field. The editors have assembled chapters combining reflexive, theoretical, and practical contributions. Together they address current debates surrounding participatory methods and Neurodiversity Studies and are unique in giving voice to mainly neurodivergent researchers and contributors across autism, ADHD, acquired brain injury, and multiple neurodivergence. The first of its kind, this much-needed volume contains essential reading for all those learning and teaching in the field of neurodiversity. It further represents a valuable resource for students and academics at all levels, participatory or creative researchers, research commissioners, and research evidence users across the social sciences. Chapter 4 is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com. Hanna Bertilsdotter Rosqvist is a sociologist and professor in social work at Södertörn University, Sweden. David Jackson-Perry is a sociologist and visiting scholar at Queen’s University, Belfast, UK. He is also a specialist in sexual health and HIV project manager at the University Hospital of Lausanne, Switzerland. .

Contents:

Part I: Setting the scene

Chapter 1. An introduction to research methods and ethics in Neurodiversity Studies (David Jackson-Perry & Hanna Bertilsdotter Rosqvist)

Chapter 2. Critical Autism Studies: Roots and branches (David Jackson-Perry)

Chapter 3. An introduction to Critical ADHD Studies (Andrew Ivan Brown, Hanna Bertilsdotter Rosqvist & David Jackson-Perry)

Part II: Knowing and doing: Research ethics and methods

Chapter 4. Co-developing an autism research funding application to facilitate ethical and participatory research: The Autism from Menstruation to Menopause Project (Aimee Grant, Kathryn Williams, Karen Henry, Willow Holloway, Christina Nicolaidis, Helen Kara & Amy Brown)

Chapter 5. Neurodiverse research collaboration within a European biomedical project: Limits and possibilities (Joke Struyf, Cecilia Ingard & Hanna Bertilsdotter Rosqvist)

Chapter 6. Practicing what you preach – A commentary on Chapter 5 (Kristien Hens)

Chapter 7. Strangers and friends: Navigating neurodiverse research collaboration (Amy Pearson, Hanna Bertilsdotter Rosqvist, Steven K. Kapp, Lill Hultman, Catherine Watson, Gemma Williams, Sofia Österborg Wiklund, Paul Stenner, Monique Botha & Lindsay O’Dell)

Chapter 8: Co-creation in a neuromixed space (Lill Hultman, Mikael Åkerlund, Fredrik Sandman & Jeanette Nelson)

Chapter 9. Neuromixed participatory action research: A dialogical method (Marjorie Désormeaux-Moreau & Isabelle Courcy)

Chapter 10. Innovative and neuro-affirming autistic approaches to autism research (Sandra Thom-Jones & Jennifer Lowe)

Chapter 11. Fostering ethical and caring fieldwork practices in ADHD research (Shruti Taneja-Johansson)

Chapter 12. Doing participatory ADHD-led research (Lill Hultman & Maya Hultman)

Chapter 13. An inclusive methodology for research with multiply neurodivergent participants (Romy Hume)

Chapter 14: Developing a phenomenology of autism (Nicola Shaughnessy, Jonathan Green, Emma Williams, Jonathan Smith, Bastian Greshake Tzovaras, Georgia Aitkenhead, Damian Milton, Emily Jones & Karen Leneh Buckle)

Chapter 15. A phenomenological methodology for inclusively researching the views and experiences of autistic people with profound learning disabilities (Ned Redmore)

Chapter 16. Narrative research, reflexivity, and AuDHD lived experiences (Lydia Stetson)

Chapter 17. On the simple joys of bouncing: Duoethnography of neurodivergent researchers in academia (Teddy G. Goetz & Noah Adams)

Chapter 18. The (in)accessibility of UK universities’ ethics application in humanities and social sciences (Katie Munday)

Chapter 19. Meaningful engagement with neurodivergent public work (Alyssa Hillary Zisk)

Chapter 20. Participatory methods: Researching autistic sexuality, intimacy, and authenticity (David Jackson-Perry)

Chapter 21. Using email interviews to understand autistic experiences (Claire Chapman).-Chapter 22. Unknowing as a methodological tool: Autism, authenticity, and epistemic injustice (David Jackson-Perry)

Part III: Looking Back to the Future

Chapter 23. ADHD, academics, and communities: Who are the ‘ADHD experts’? (Andrew Ivan Brown)

Chapter 24. Power to the people (Jac den Houting, Abby Sesterka, and Elizabeth Pellicano)

Chapter 25. Neurodivergent futures (Dora M. Raymaker & Christina Nicolaidis)

Chapter 26. Research methods and ethics in Neurodiversity Studies: Looking back, moving forward (Hanna Bertilsdotter Rosqvist & David Jackson-Perry).

Notes:

Includes bibliographical references and index.

ISBN:

9783031661273

3031661273