Research handbook on end of life care and society / edited by David Clark (School of Social and Environmental Sustainability, University of Glasgow, UK) and Annemarie Samuels (Institute of Cultural Anthropology and Development Sociology, Leiden University, the Netherlands).

Format:

Book

Contributor:

Clark, David, editor.

Samuels, Annemarie, editor.

Edward Elgar Publishing, publisher.

Language:

English

Subjects (All):

Terminal care--Social aspects.

Terminal care.

Genre:

Electronic books.

Physical Description:

1 online resource (576 pages)

Place of Publication:

Northampton : Edward Elgar Publishing, 2025.

Summary:

"This comprehensive Research Handbook provides an accessible overview of research on palliative and end of life care in its social context. It examines key theories, methods and research findings, presenting crucial social science and public health perspectives. Leading and emerging international scholars discuss a range of issues including population ageing, growing pressures on health and social care systems, assisted dying and new cultural responses to human mortality and bereavement. They delve into detailed case studies, such as the genealogies of culturally specific nursing, home care in Europe, patient and public involvement in the UK, end of life care pathways in Japan and palliative care in resource-poor settings within African countries. Adopting an interdisciplinary approach, the Research Handbook also addresses models of end of life care in relation to wider society, and outlines future research priorities. This insightful Research Handbook will greatly benefit students and scholars of sociology, anthropology and social policy, particularly those who are studying public health, the welfare state and social work. It is also a vital resource for practitioners and policy makers in palliative and end of life care"-- Provided by publisher.

Contents:

Contents: 1. Scoping the field of end of life care and society / David Clark and Annemarie Samuels

Part I: Theories, methods, and boundaries in end of life care research

2. Theorising end of life care / Vibeke Graven, Michael Hviid Jacobsen and Helle Timm

3. Ongoing dilemmas and new approaches in palliative care and end of life care research: Methods, ethics, and patient and public involvement in the United Kingdom / Clare Gardiner and Emilie Couchman

4. Humanities collaborations in end of life care / Jordan Owen McCullough and Anna Magdalena Elsner

5. Public engagement in palliative and end of life care research / Sonja McIlfatrick and Deborah Muldrew

6. Total pain and human gut microbiota / Marian Krawczyk

7. Inclusiveness in research teams: Reflections on the te ārai palliative care and end of life research group, a decade on / Tess Moeke-Maxwell, Merryn Gott and Brianna Smith

8. Plural imaginaries: Reflections on end of life care from India / Devi Vijay

Part II: Culture, communication, and context

9. Homing in on societal changes in meanings around place of death / Renske Visser

10. Displacement and re-imagining end of life care / Parin Dossa

11. Belonging at the end of life: Genealogies of 'culturally specific' nursing home care in Europe / Olivia Killias and Eva Soom Ammann

12. Sociocultural diversity in approaching pain at the end of life / Adrienne E. Strong and Megan D. Cogburn

13. Bioethical frameworks in end of life care decision-making / Sandra Martins Pereira, Paulo J. Borges and Pablo Hernández-Marrero

14. Cultural communication in palliative care / Liesbeth Mirjam van Vliet, Edison Iglesias de Oliveira Vidal, Masanori Mori, Constance Dahlin, Eve Namisango, Olaf Geerse and Diah Martina

Part III: Fields of practice

15. Standardisation of end of life care / Shimon Tashiro and Tatsuya Morita

16. Compassionate communities / Bert Quintiens and Steven Vanderstichelen

17. New approaches to bereavement experience and research / Lucy Selman

18. Talking about dying and end of life care / Gitte Koksvik

19. Politics and practices of assisted dying / Marcos Freire de Andrade Neves

20. Death, dying, and design / Bruce M. Tharp

21. The arts in palliative care: Critical perspectives on evidence and practice / Giorgos Tsiris and Jenny Baxley Lee

Part IV: Social inequalities

22. End of life and poverty / Maddy French and Yakubu Salifu

23. Barriers to accessing end of life care for minority ethnic communities / Sophie Law-Clucas and Jonathan Koffman

24. Gender and end of life care work / Merryn Gott, Tessa Morgan, Lisa Williams and Julia Slark

25. Homelessness at the end of life / Kelli I. Stajduhar and Ashley Mollison

26. Dying in the margins: A case study of methods and impacts / Sam Quinn and Naomi Richards

27. Who gets specialised care at the end of life? / Stephen Connor and Carlos Centeno

Part V: Policy interventions

28. The opportunities and limitations of 'choice' at the end of life / Sandy Whitelaw and David Clark

29. National policies for end of life care / Chao Fang

30. Public health interactions with palliative and end of life care / David Clark and Sandy Whitelaw

31. The global spread of palliative care: How models, ideas, and practices travel / Natashe Lemos Dekker

32. Mapping the development of palliative care in resource-poor settings: Examples from African countries and contexts / Eve Namisango, William E. Rosa and Yakubu Salifu

33. Palliative care as a global health issue / Joseph Clark

34. Concluding points and future agendas: Afterthoughts and afterlives / Annemarie Samuels and David Clark.

Notes:

Includes bibliographical references and index.

Creative Commons Attribution - NonCommercial - NoDerivatives 4.0 Internationa, CC BY-NC-ND 4.0, cc https://creativecommons.org/licenses/by-nc-nd/4.0/

Description based on print record.

ISBN:

9781035317349 (e-book)

Access Restriction:

Restricted for use by site license.