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Metamorphosis : who we become after facial paralysis / Faye Linda Wachs.
- Format:
- Book
- Author/Creator:
- Wachs, Faye Linda, author.
- Language:
- English
- Subjects (All):
- People with paralysis--Social conditions.
- People with paralysis.
- Facial paralysis--Social aspects.
- Facial paralysis.
- Facial expression--Social aspects.
- Facial expression.
- Physical Description:
- 1 online resource (227 pages)
- Edition:
- 1st ed.
- Place of Publication:
- New Brunswick, NJ : Rutgers University Press, [2023]
- Summary:
- "Losing her smile to synkinesis after unresolved Bell's Palsy changed how Faye Linda Wachs was seen by others and her internal experience of self. In Metamorphosis, interviewing over 100 people with acquired facial difference challenged her presumptions about identity, disability, and lived experience. Participants described microaggressions, internalizations, and minimalizations, and their impact on identity. Heartbreakingly, synkinesis disrupts the ability to have shared moments. When one experiences spontaneous emotion, wrong nerves trigger mis-feel and misperception by others. One is misread by others and receives confusing internal information. Communication of and to the self is irrevocably damaged. Wachs describes the experience as a social disability. People found a host of creative ways to reinvigorate their sense of self and self-expression. Like so many she interviewed, Wachs experiences a process of change and growth as she is challenged to think more deeply about ableism, identity, and who she wants to be"-- Provided by publisher.
- Contents:
- Cover
- Title Page
- Copyright
- Dedication
- Contents
- 1. When Life Gives You Lemons . . . Interview Lots of Other People Also with Lemons
- 2. Theorizing Change: Culture, Identity, and the Face
- 3. Microaggressions, Internalizations, and Contested Ideological Terrain
- 4. It's My Face-Why That Matters
- 5. Disrupted Selves
- 6. Someone I Would Rather Be
- 7. Walking Away: The Challenge of Change
- Appendix A: Summarizing Facial Difference
- Appendix B: Overview of Methods
- Appendix C: Summary of Participants with Facial Differences
- Acknowledgments
- Notes
- References
- Index
- About the Author.
- Notes:
- Description based on print version record.
- Includes bibliographical references and index.
- ISBN:
- 1-9788-0533-0
- 1-9788-0535-7
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