Developing and testing animated computer surveys for measuring young children's health / Sherrie Kaplan [and four others].

Format:

Book

Author/Creator:

Kaplan, Sherrie, author.

Language:

English

Subjects (All):

Epidemiology.

Health promotion.

Clinical health psychology.

Physical Description:

1 online resource

Place of Publication:

Washington, D.C. : Patient-Centered Outcomes Research Institute (PCORI), 2019.

Summary:

BACKGROUND: Existing measures of children's health status currently fall into 2 categories: they either require that the child be literate and aged 8 years or older, or they are designed to be parent reported or interviewer administered for younger children. Using an animated, computer-administered approach, the Child Health Rating Inventories (CHRIS) has previously been shown to be reliable and valid for use among young children with chronic diseases (n = 321). OBJECTIVES: To assess the psychometric properties of the CHRIS general health status scales and develop and test additional CHRIS modules to assess preoperative anxiety and postoperative pain management among children aged 4 to 12 years undergoing surgery. METHODS: We conducted the study at an academic medical center. Focus groups of parents and children informed the content of the perioperative anxiety and postoperative pain management scales. We collected data preoperatively (n = 483 children, n = 578 parents) and at the second and seventh days following discharge (n = 258 children, n = 353 parents). We tested the internal consistent reliability of all multi-item CHRIS measures for the overall sample as well as by the child's age, gender, and race/ethnicity. We assessed construct validity using factor analysis of CHRIS general health and newly developed measures. To assess concurrent validity we correlated (1) CHRIS general health measures with the Pediatric Quality of Life Inventory (PedsQL) and the Functional Disabilities Inventory (FDI); (2) the CHRIS preoperative anxiety with the State-Trait Anxiety Inventory for Children (STAI-CH); and (3) the CHRIS postoperative pain management with Parents Postoperative Pain Measure (PPPM). RESULTS: Cronbach α was >.70 for most subscales of the CHRIS general health measure, α >.88 for the composite child-reported CHRIS general health measure for each of the study periods, α = .82 for child-reported preoperative anxiety measure, and α = .76 for postoperative pain measure. We found no differences in reliability by age, race/ethnicity, or gender for any of the CHRIS measures. Factor analysis of general CHRIS subscales supported both a 4- and 2-factor solution. We found statistically significant positive correlations between the child-reported CHRIS general health subscales and composite PedsQL and FDI (r = 0.28, P < .001 and r = 0.43, P < .001, respectively) and negative correlations with measures of illness including days missed from school and utilization of health care. Child-reported CHRIS perioperative anxiety was positively correlated with STAI-CH (r = 0.044, P < .001), and CHRIS postoperative pain management was positively correlated with the PPPM (r = 0.52, P < .001). While we found modest positive correlations between child- and parent-reported CHRIS measures, we found differences between the 2 groups, with parents reporting significantly better health for their children than children's self-reports (mean difference = 12.4 for the CHRIS composite measure; P < .001). CONCLUSIONS: The CHRIS approach to health-related quality-of-life assessment in young children (aged 4-12 years) fills a gap in reaching this population with practical and feasible administration methods. Because they can be self-administered; scored in real time; run on multiple, different devices; and completed rapidly, the CHRIS measures may represent a significant contribution to the collection of patient-reported outcomes in children. LIMITATIONS: We conducted this study at one academic medical center. More research in more diverse clinical settings and patient samples is needed to evaluate the generalizability of our findings.

Contents:

ABSTRACT

BACKGROUND

PARTICIPATION OF PATIENTS AND OTHER STAKEHOLDERS IN THE DESIGN AND CONDUCT OF RESEARCH AND DISSEMINATION OF FINDINGS

METHODS

RESULTS

DISCUSSION

CONCLUSIONS

REFERENCES

APPENDIX.

Notes:

Description based on publisher supplied metadata and other sources.