Technological innovations in participatory health research with adolescents / Leonor Rodriguez Estrada, University of Edinburgh.

Format:

Book

Author/Creator:

Rodriguez-Estrada, Leonor, author.

Language:

English

Subjects (All):

Teenagers--Health and hygiene--Research--Technological innovations.

Teenagers.

Physical Description:

1 online resource (xii, 227 pages) : digital, PDF file(s).

Edition:

First edition.

Place of Publication:

Cambridge, United Kingdom ; New York, NY : Cambridge University Press, 2025.

Summary:

This book offers a critical overview of participatory methods in health research with adolescents and youth. It introduces participatory methodology as an ethos and practice, before covering specific paradigms and methods, including participatory action research, community-based participatory research, co-design, co-creation, participatory design, peer research, youth as researchers, integrated knowledge translation, and youth-adult partnerships. Specific technologies are also covered, such as mobile apps and video games, sonification, photovoice, visual mapping, and Internet-based approaches. A guidebook to both theory and methods, it demonstrates technology's potential to drive impactful research and inclusive study design.

Contents:

Cover

Half-title

Title page

Imprints page

Epigraph

Table of Contents

List of Figures

List of Tables

Introduction

Chapter 1 Health Research with Adolescents

1.1 What Is Adolescence?

1.2 Participatory Health Research with Adolescents

1.3 Adolescents, Technology and Health

1.4 Participation

1.4.1 Theoretical Underpinning of Participation

1.4.1.1 Rights-Based Approach

1.4.1.2 Instrumental and Epistemological

1.4.1.3 Impact on Development

1.4.1.4 Empirical Rationales

1.4.2 Developmental Considerations of Participation

1.4.2.1 Family Participation

1.4.2.2 Social and Emotional Development

1.4.2.3 Perspective of Others

1.4.2.4 Gender

1.5 Participatory Research

1.6 Adolescent Participation

1.7 Participatory Methods

1.7.1 Community-Based Participatory Research

1.7.2 Co-design

1.7.3 Co-creation

1.7.4 Participatory Design

1.7.5 Participatory Action Research

1.7.5.1 Situated and Inquiry Based

1.7.5.2 Participatory

1.7.5.3 Transformative and Activist

1.7.6 Youth-Led Participatory Action Research

1.7.7 YPAR 2.0

1.7.8 Youth as Researchers

1.7.9 Peer Research

1.7.10 Integrated Knowledge Translation

1.7.11 Youth-Adult Partnerships

Chapter 2 Methodological Considerations in Participatory Research with Adolescents

2.1 The Issue of Power

2.2 Diversity and Inclusion

2.2.1 Language

2.2.2 Acknowledge the Developmental Needs and Capabilities of Adolescents

2.3 Participant Retention

2.3.1 Facilitating Engagement and Research Retention

2.4 Setting Realistic Expectations

2.5 Selecting the Most Suitable Research Method

2.5.1 Selecting the Most Appropriate Technology

Chapter 3 Safety and Ethics in Technological Participatory Health Research with Adolescents

3.1 Ethical Principles

3.1.1 Belmont Principles.

3.1.1.1 Respect for Persons

3.1.1.2 Beneficence

3.1.1.3 Justice

3.1.2 Declaration of Helsinki

3.1.3 Gillick Competence and Fraser Guidelines

3.2 Evaluating and Determining Participant Competence

3.3 Informed Consent in Health Research

3.3.1 Situated Ethics Approach

3.4 Technology, Research and Ethics

3.5 Defining and Evaluating Risk in Health Research

3.5.1 Researching 'Sensitive' Topics

3.5.2 Safety and Vulnerability

3.6 Rewards and Incentives

3.7 Relationships and Collaborations

3.8 Inclusion

3.9 Data Management Online

3.10 Big Data and Ethics

Adolescent Adjustment to Maternal Cancer

Participant Consent Form

Purpose of the Study

What will be involved if I agree to take part in this study?

Can I withdraw from the study?

Confidentiality

Chapter 4 Mobile Apps and Video Games

4.1 What Do Adolescents Want from Technology?

4.1.1 Activities

4.1.2 Customisation

4.1.3 Personalisation

4.1.4 Ambassadors

4.1.5 Language

4.1.6 Comparison/Competition

4.1.7 External Information

4.1.8 Ease and Comfort of Use

4.1.9 Cost and Accessibility

4.2 Considerations for App Usage in Adolescent Research

4.3 eHealth

4.4 mHealth

4.5 Participatory Research Methods

4.5.1 Theoretical Frameworks

4.6 App Development

4.6.1 Design

4.6.2 Prototype

4.6.3 Usability Testing

4.6.4 Programming

4.6.5 Evaluation

4.7 Video Games

4.7.1 Game Design

4.7.2 Types of Games

Chapter 5 Sonification

5.1 Sonification

5.2 Participatory Sonification

5.2.1 Stage 1: Ideation

5.2.2 Stage 2: Mediation

5.2.3 Stage 3: Translation

5.3 Sonification and Health

5.4 Ethical Considerations

Chapter 6 Photovoice and Visual Methods

6.1 Photovoice

6.2 Photo Elicitation.

6.3 Photovoice in Health Research

6.4 Self-Filming

6.5 Ethical Considerations

6.5.1 Who Will See the Participant's Material?

6.5.2 Including People in the Material

6.5.3 Disruptions

6.5.4 Public Use of Images

6.5.5 Law

Chapter 7 Videos and Animations

7.1 Participatory Videography

7.2 Experience-Based Co-design

7.3 Videos and Health Research

7.4 Ethics

Chapter 8 Visual Mapping

8.1 Participatory Mapping

8.2 Story and Interactive Maps

8.3 Technology and Software for Mapping

8.4 Ethical Considerations

Chapter 9 Internet-Based Participatory Research

9.1 Adolescents' Views and Wishes

9.2 Health Research Online

9.3 Participation in Online Methods

9.4 Safety and Ethics

Chapter 10 'Meaningful' Participation

10.1 Models of Participation

10.2 The Limits of Participation

10.3 What Is Needed for Meaningful Participation?

10.4 Defining Problems in Collaboration with Adolescents

10.5 Policy

10.6 Feedback and Dissemination

10.7 Involving Adolescents in Health Services and Health Policy Development

Chapter 11 Conclusions

References

Index.

Notes:

Title from publisher's bibliographic system (viewed on 20 Feb 2025).

Includes bibliographical references and index.

ISBN:

9781009450492

1009450492

9781009450454

100945045X

9781009450485

1009450484