Amyotrophic lateral sclerosis : accelerating treatments and improving quality of life : proceedings of a workshop--in brief / Rebecca A. English [and three others].

Format:

Book

Author/Creator:

English, Rebecca A., author.

Language:

English

Subjects (All):

Amyotrophic lateral sclerosis.

Physical Description:

1 online resource (14 pages)

Other Title:

Amyotrophic lateral sclerosis

Place of Publication:

Washington, DC : National Academies Press, 2023.

Summary:

Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease. No present treatments can stop or reverse the disease, although Food and Drug Administration (FDA)-approved formulations may extend life by several months. As part of the information-gathering phase of a study on ALS, the National Academies Board on Health Care Services and Board on Health Sciences Policy cohosted a virtual public workshop series in August and September 2023 to identify key actions for the public, private, and nonprofit sectors to undertake to make ALS a livable disease within a decade. Speakers explored topics including access to high-quality, evidence-based ALS care, the lived experience of ALS, and ALS research and therapeutic development. This publication summarizes the presentations and discussion of the workshop.

Notes:

Description based on publisher supplied metadata and other sources.