Consumer health informatics : enabling digital health for everyone / Catherine Arnott Smith, Alla Keselman.

Format:

Book

Author/Creator:

Smith, Catherine Arnott, author.

Keselman, Alla, author.

Series:

Chapman & Hall/CRC healthcare informatics series.

Chapman & Hall/CRC healthcare informatics series

Language:

English

Subjects (All):

Medical informatics.

Physical Description:

1 online resource : illustrations (chiefly color)

Edition:

First edition

Place of Publication:

Boca Raton, Florida ; London ; New York : CRC Press, 2021.

Summary:

"Consumer Healthcare Informatics educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered not just as a rich consumer technology, with promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy and security, requiring both designer and user to engage in critical thinking around their choices"-- |c Provided by publisher.

Contents:

Cover

Half Title

Series Page

Title Page

Copyright Page

Table of Contents

Part I: Foundations

Chapter 1: Individuals' Opportunities and Challenges in the Era of Participatory Healthcare

1.1 From Paternalistic Roots to Ethical Patient Engagement

1.2 21st -Century Information Technology as Game-Changer

1.3 Information Sources for Facilitating Patients' and the Public's Engagement with Healthcare

1.4 Participatory Healthcare Societies and Conferences

1.5 Patient Participation in Different Aspects of Medical Care, Research, and Development

1.5.1 Patient Participation in Their Care

1.5.2 Patients as Influencers and Promoters of Biomedical Research

1.5.3 Patient Communities as Participant-Organized Crowdsourcing Networks

1.5.4 Patients as Procedure and Technology Developers

1.6 Impact of Participatory Medicine on Health Outcomes and the Cost of Care

1.7 Systemic Barriers and Challenges to Patient Engagement

1.8 The Challenge of Health Literacy and Digital Literacy Requirements for Participation

1.9 Patient Engagement: Right Versus Responsibility

1.10 Role of Consumer Health Informatics Tools in Supporting Participatory Healthcare

Web Resources

References

Chapter 2: Consumer Health Informatics as a Field

2.1 What Is Consumer Health Informatics?

2.2 Scope of the CHI Field

2.3 Who Does Consumer Health Informatics?

Chapter 3: Health Literacy and Other Competencies: The Skills Consumers Need in Order to Be Effective in the Digital Health Information Environment

3.1 Health Literacy

3.1.1 The Concept's Beginnings

3.1.2 Early Assessment of Health Literacy

3.1.3 Health Literacy Levels in the Population

3.2 Association with Health Behaviors and Outcomes

3.3 Is the Relationship Between Health Literacy and Outcomes Causal?.

3.4 Newer Definitions and Measures of Health Literacy

3.5 From Health Literacy to E-Health Literacy: Other Relevant Competencies

3.6 Practical Considerations for Designers and Promoters of Consumer Health Information Tools

3.6.1 Reading Competency Problems

3.6.2 Numeracy Problems

3.6.3 Supporting Media and Information Literacy

3.6.4 Supporting Computer Literacy

3.6.5 Supporting Science Literacy

3.7 Conclusions

Chapter 4: Online Databases to Support Consumer Health Informatics

4.1 Health Information Online: An Introduction

4.2 Bibliographic Databases

4.3 Databases and Literature for CHI

4.3.1 Healthcare: Medicine

4.3.1.1 PubMed and MEDLINE

4.3.1.2 PsycINFO

4.3.2 Healthcare: Nursing

4.3.2.1 CINAHL

4.3.2.2 HaPI

4.3.3 Healthcare: Consumer-Facing

4.3.3.1 Consumer Health Complete

4.3.4 Computer and Information Science

4.3.4.1 ACM Digital Library

4.3.5 Library and Information Science

4.3.5.1 LISTA (Library, Information Science &amp

Technology Abstracts)

4.3.5.2 LISA (Library and Information Science Abstracts)

4.3.6 Engineering

4.3.6.1 IEEE Xplore

4.3.6.2 INSPEC

4.3.7 IT Industry

4.3.7.1 IBISWorld

4.3.7.2 BCC Research

4.4 Citation Databases

4.4.1 Web of Science

4.4.2 Scopus

4.4.3 Google Scholar

4.5 Databases Versus Search Engines: A Comparison

Web resources

Chapter 5: Trusted Information Sources

5.1 Overview: Accuracy and CHI

5.2 Evaluation Guidelines

5.2.1 General Criteria

5.2.1.1 Authority/Authors

5.2.1.2 Purpose

5.2.1.3 Recency

5.2.1.4 Citations

5.3 Health-Information-Specific Instruments

5.3.1 DISCERN

5.3.2 HONCode

5.4 Other Widely Used standards

5.5 Trusted Sources of Health Information

5.6 Common Criteria.

5.7 Resources Developed by Healthcare Professionals and Other Trusted Sources

5.8 Librarians as Intermediaries for Quality

Chapter 6: People Engaging with Health Information Technology

6.1 Consumers

6.2 Patients

6.2.1 Exemplar Technology: Consumers and Patients

6.3 Caregivers

6.3.1 Exemplar Technology: PHRs and Portals for Caregivers

6.3.2 Exemplar Technology: Apps for Coordinating Caregiving

6.3.3 Exemplar Technology: Psychosocial Support Networks for Caregivers

6.4 Parents

6.4.1 Exemplar Technology: MyChart Bedside

6.5 Children, Adolescents, and Young Adults

6.5.1 Exemplar Technology: College Students

6.6 Intermediaries

6.7 Seniors

6.7.1 Exemplar Technology: National Institute on Aging Website

6.7.2 Exemplar Health Technology: Medisafe

Part II: Tools

Chapter 7: PHRs and Patient Portals

7.1 Definitions

7.1.1 Personal Health Record (PHR)

7.1.2 Patient Portals

7.1.3 "Tethered" versus "Untethered"

7.2 Portals: An Overview

7.2.1 History

7.2.2 Current Status

7.2.3 Exemplar Users of Patient Portals

7.3 Standards Affecting PHRs/Portals

7.3.1 Key Standards Organizations and Resources for Standards Development in Healthcare

7.4 Portal Characteristics and Contents

7.5 Challenges

7.5.1 Privacy

7.5.2 Digital Divide

7.6 Expanding technological health access

7.6.1 Future Directions

7.6.1.1 Expanding Markets

7.6.1.2 Expanding Access

Chapter 8: There Is an App for That: The Universe and the Promise of Consumer Health Mobile Apps

8.1 Introduction: Why Apps?

8.2 The Evolving Universe of Consumer Health Apps

8.2.1 What Topics Are Covered in Consumer Health Apps?

8.2.2 Features: What Do Apps Do?

8.3 Classifying Consumer Health Apps: An Attempt to Think Systematically.

8.4 Challenges of Quality Control and Assessment

8.4.1 Challenges of Apps Certification

8.4.2 Developing Authoritative and Reliable Rating Criteria

8.4.3 So, Are These Apps Any Good?

8.5 An In-Depth Look at Important App Characteristics

8.5.1 Content Accuracy

8.5.2 Usability

8.5.3 Responsiveness to User Needs

8.5.4 Health Professionals' Involvement in Design

8.5.5 Fit to Behavioral Change Theory

8.5.6 Clinical Effectiveness

8.5.7 Data Privacy and Security

8.6 Challenges of Finding Good Apps

8.6.1 Searching App Stores

8.6.2 Asking a Doctor

8.6.3 Advocacy Organizations

8.6.4 Finding App Libraries

8.7 Conclusions

Chapter 9: Smart Medical Homes and Their Potential to Support Independent Living

9.1 What Are Smart Medical Homes?

9.1.1 Smart Home Concept

9.2 Do Smart Medical Homes Actually Exist? Concept versus Reality

9.2.1 Who Can Benefit from Smart Medical Homes?

9.3 Smart Medical Homes' Information Flow: It's All About the Data

9.3.1 Acquiring Raw Data via Sensors and Trackers

9.3.1.1 Trackable Data Types

9.3.1.2 Data Tracking Devices

9.3.2 Processing, Integrating, and Analyzing the Data

9.3.3 Making and Implementing Data-Driven Decisions

9.4 Supporting Essential Daily Living Activities

9.5 The Importance of User Engagement in Identifying Challenges of Daily Living Activities

9.6 Technical Challenges to Address in Smart Medical Homes

9.6.1 Energy Efficiency

9.6.2 Interoperability

9.6.3 Privacy and Security

9.7 Attempts to Regulate Privacy and Security of Smart Homes

9.8 Non-Technical Challenges to the Emergence of Smart Medical Homes

9.8.1 Making It Specific: Some Examples

9.8.1.1 In the Wild

9.8.1.2 In the Laboratory

9.8.1.3 Home Healthcare Robots.

9.9 Evidence of Clinical Significance of Smart Medical Homes Technology

9.9.1 Impact on Health and Well-Being

9.9.2 Special Case: Impact on Ability to Diagnose Depression and Dementia

9.10 Ethical Consideration of Smart Medical Homes Development

9.10.1 Users' Understanding of Privacy and Security Considerations

9.10.2 Impact on Social Relationships

9.10.3 Diffusion of Responsibility

9.10.4 Impact on Autonomy and Independence

9.11 Conclusions

Chapter 10: Patient Communities

10.1 Introduction

10.2 Brief history

10.3 Examples of Patient Communities

10.4 Benefits of Patient Communities as Information Sources

10.4.1 Patients Supporting Each Other

10.5 Challenges of Patient Communities

Chapter 11: The Ethics of Consumer Health Informatics

11.1 Foundations of Ethics in CHIT

11.1.1 Respect for Autonomy

11.1.2 Non-Maleficence

11.1.3 Beneficence

11.1.4 Justice

11.2 Ethical Codes of the Professions

11.3 Exemplar: DTC Genetic Testing

11.3.1 DTC-G: A Brief Timeline

11.3.2 Motivation For Use

11.3.3 Concerns about Inaccuracy and Incompleteness of Test Results

11.3.4 Ethical Implications of Literacies' Requirements

11.3.5 Science Literacy and Understanding Risk

11.3.6 Supporting Consumer Experience: The Current State of Affairs

11.3.7 Receiving Bad News Alone

11.4 Privacy and Ethics

11.4.1 Privacy Considerations in DTC-G Testing

11.5 Conclusions

Index

A

B

C

D

E

F

G

H

I

J

K

L

M

N

O

P

Q

R

S

T

U

V

W

Y

Z.

Notes:

Includes index.

Includes bibliographical references and index.

Description based on print version record.

ISBN:

0-429-80888-7

0-429-44237-8

0-429-80889-5

9780429442377

OCLC:

1224579535