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Entanglements of rare diseases in the Baltic Sea Region / Małgorzata Rajtar and Katarzyna E. Król.
- Format:
- Book
- Series:
- Anthropology of well-being
- Anthropology of well-being: Individual, community, society
- Language:
- English
- Subjects (All):
- Medical anthropology--Case studies.
- Medical anthropology.
- Rare diseases--Treatment.
- Rare diseases.
- Physical Description:
- 1 online resource (x, 213 pages) : illustrations.
- Place of Publication:
- Lanham : Lexington Books, [2024]
- Contents:
- Introduction
- Matriarchal Management, Expert Caregiving, and Intensive Mothering Among Mothers of Children with Phenylketonuria
- Between Paternalism and Autonomy. Polish and Swedish Configurations of Caring for Children with Inherited Metabolic Disease
- Food as Medicine: Culinary Workshops for Patients with Rare Inborn Errors of Metabolism from Anthropological and Dietary Perspectives
- Between Standard and Experimental: Knowledge Production and Tube Feeding Practices in Finland and Poland
- Entangled and Layered Temporalities: Rare-disease Patients' Expectations about Clinical Gene Editing
- Health Emigration in Rare Disease: A Case Study
- "Are You a Disabled Person?" Disability and Rare Metabolic Disorders in Poland
- Conclusion: Rare Diseases and Cultures of Caring.
- Notes:
- Includes bibliographical references and index.
- Electronic reproduction. Ann Arbor, MI Available via World Wide Web.
- Description based on online resource; title from digital title page (viewed on November 22, 2023).
- Other Format:
- Print version: Entanglements of rare diseases in the Baltic Sea Region
- ISBN:
- 9781666942392
- 1666942391
- Publisher Number:
- 40032028100
- Access Restriction:
- Restricted for use by site license.
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