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Childhood cancer : a parent's guide to solid tumor cancers
- Format:
- Book
- Author/Creator:
- Spurgeon, Anne, Author.
- Keene, Nancy, Author.
- Series:
- Childhood cancer guides Childhood cancer
- Language:
- English
- Subjects (All):
- Cancer in children--Popular works.
- Cancer in children.
- Physical Description:
- 1 online resource (576 pages)
- Edition:
- 1st ed.
- Place of Publication:
- Bellingham WA Childhood Cancer Guides 2016
- Language Note:
- English
- Summary:
- A Comprehensive Guide for Parents Navigating Childhood Cancer.This essential resource empowers parents and caregivers of children diagnosed with solid tumor cancers, offering clarity and support during a challenging time.
- Contents:
- Front Cover
- Praise for previous editions of Childhood Cancer
- Title Page
- Copyright
- Dedication
- Table of Contents
- Foreword
- Introduction
- 1. Diagnosis
- Signs and symptoms
- Where should your child receive treatment?
- Physical responses
- Emotional responses
- The immediate future
- 2. Bone Sarcomas
- The skeletal system
- Osteosarcoma
- Ewing sarcoma family of tumors
- Information on standard treatments
- 3. Liver Cancers
- The liver
- Diagnosis
- Hepatoblastoma
- Hepatocellular carcinoma
- Undifferentiated embryonal sarcoma
- Choriocarcinoma of the liver
- Liver transplantation
- 4. Neuroblastoma
- The sympathetic nervous system
- The adrenal glands
- Who gets neuroblastoma?
- Staging
- Prognosis
- Treatment
- Newer treatment approaches
- 5. Retinoblastoma
- The eye
- Who gets retinoblastoma?
- Diagnosis and staging
- 6. Soft Tissue Sarcomas
- Muscles and connective tissues
- Diagnosis of soft tissue sarcomas
- Rhabdomyosarcoma
- Non-rhabdomyosarcoma soft tissue sarcomas
- 7. Kidney Tumors
- The kidneys
- Signs and symptoms of kidney tumors
- Wilms tumor
- Other types of childhood kidney cancers
- 8. Telling Your Child and Others
- Telling your child
- Telling the siblings
- Notifying the family
- Notifying friends and neighbors
- Notifying your child's school
- 9. Choosing a Treatment
- Treatment basics
- Standard treatment
- The protocol
- Clinical trials
- Making a decision
- The entire clinical trial document
- Removing your child from a clinical trial.
- Protocol changes
- 10. Coping with Procedures
- Planning for procedures
- Pain management
- Procedures
- 11. Forming a Partnership with the Medical Team
- Choosing a hospital
- The tumor board
- Finding an oncologist
- Types of relationships
- Communication
- Getting a second opinion
- Conflict resolution
- Changing doctors
- 12. Hospitalization
- The room
- The floor
- Food
- Parking
- The endless waiting
- Working with the staff
- Staying with your child
- Preventing mistakes
- Playing
- 13. Venous Catheters
- External catheter
- Subcutaneous port
- Peripherally inserted central catheter
- Cost
- Choosing not to use a catheter
- Adhesives
- 14. Surgery
- Pediatric surgeons
- Types of surgery
- Presurgical evaluation
- Anesthesia
- The surgery
- Discharge
- Rehabilitation
- 15. Chemotherapy
- How chemotherapy drugs work
- How chemotherapy drugs are given
- Dosages
- Different responses to medications
- Questions to ask the doctor
- Guidelines for calling the doctor
- Chemotherapy drug list
- Chemotherapy drugs and their possible side effects
- Prophylactic antibiotics
- Colony-stimulating factors
- Antinausea drugs used during chemotherapy
- Drugs used to relieve pain
- Topical anesthetics to prevent pain
- Complementary treatments
- Alternative treatments
- 16. Common Side Effects of Treatment
- Bed wetting
- Changes in taste and smell
- Constipation
- Dental problems
- Diarrhea
- Fatigue and weakness
- Hair loss
- Learning disabilities
- Low blood cell counts
- Mouth and throat sores
- Nausea and vomiting
- Rehabilitation needs
- Serious illnesses
- Skin and nail problems
- Can pets transmit diseases?
- 17. Radiation Therapy
- Children who need radiation therapy
- Types of radiation therapy
- Questions to ask about radiation treatment.
- Where should your child go for radiation treatment?
- Radiation oncologist
- Radiation therapist
- Immobilization devices
- Sedation
- What to expect during a radiation treatment
- Possible short-term side effects
- Possible long-term side effects
- 18. Stem Cell Transplantation
- What is a peripheral blood stem cell transplant?
- When are transplants necessary?
- Choosing a transplant center
- Stem cell harvest and storage
- The transplant
- Paying for the transplant
- Complications after transplant
- Long-term side effects
- 19. Siblings
- Emotional responses of the siblings
- Sibling experiences
- Helping siblings cope
- Positive outcomes for the siblings
- 20. Family and Friends
- Restructuring family life
- The extended family
- Friends
- 21. Communication and Behavior
- Common behavioral changes in children
- Common behavioral changes in parents
- Improving communication and discipline
- 22. School
- Keeping the school informed
- Keeping the teacher and classmates involved
- Keeping up with schoolwork
- Helping siblings
- Returning to school
- Avoiding communicable diseases
- After treatment
- Federal laws
- Section 504 of the Rehabilitation Act of 1973
- Individuals with Disabilities Education Act
- Individual healthcare plan (IHCP)
- Your legal rights (Canada)
- The terminally ill child and school
- 23. Sources of Support
- Hospital social workers
- Support groups for parents
- Online support
- Support groups for children with cancer
- Support groups for siblings
- Parent-to-parent programs
- Hospital resource rooms
- Clergy and religious community
- Individual and family counseling
- Camps
- 24. Nutrition
- How treatment affects eating
- What kids should eat
- Making eating fun and nutritious
- Vitamin supplements
- What kids really eat.
- Dietitian/nutritionist
- Parent advice
- Commercial nutritional supplements
- Feeding by tube and IV
- 25. Medical and Financial Record-keeping
- Keeping medical records
- Keeping financial records
- Coping with insurance
- Sources of financial assistance
- 26. End of Treatment and Beyond
- Emotions
- Last treatment
- Catheter removal
- Ceremonies
- What is normal?
- Initial follow-up care
- Long-term follow-up care
- Treatment summaries
- Employment
- Health insurance
- 27. Recurrence
- Goal setting and treatment planning
- Making a decision about treatment
- 28. Death and Bereavement
- Transitioning from active treatment
- Supportive care
- Dying in the hospital
- Dying at home
- Involving siblings
- The funeral
- The role of family and friends
- Sibling grief
- Parental grief
- Appendices
- A. Blood Tests and What They Mean
- Values for healthy children
- Values for children on chemotherapy
- Common blood tests
- Your child's pattern
- B. Resource Organizations
- Solid tumor organizations (United States)
- Solid tumor organizations (Canada)
- Solid tumor organizations (Australia)
- Solid tumor organization (Germany)
- Other service organizations (United States)
- Other service organizations (Canada)
- Other service organizations (Australia)
- Educational and legal support
- Financial help
- Free air services (United States)
- Free air service (Canada)
- Free air service (Australia)
- Insurance
- Medications (low-cost or free)
- Sports organizations
- Stem cell transplantation
- Wish fulfillment organizations (United States)
- Wish fulfillment organizations (Canada)
- Wish fulfillment organizations (Australia)
- Hospice and bereavement (United States)
- Hospice and bereavement (Canada)
- Hospice and bereavement (Australia).
- C. Books, Websites, and Support Groups
- How to find the information you need
- Books
- Websites
- Online support groups
- Index
- About the Authors.
- Notes:
- Bibliographic Level Mode of Issuance: Monograph
- Description based on print version record and CIP data provided by publisher; resource not viewed.
- Description based on publisher supplied metadata and other sources.
- ISBN:
- 1-941089-91-7
- OCLC:
- 929864312
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