Nothing about us, without us! : 20 years of dementia advocacy / Christine Bryden.

Format:

Book

Author/Creator:

Bryden, Christine, 1949- author.

Language:

English

Subjects (All):

Dementia--Patients--Care.

Dementia.

Patient advocacy.

Physical Description:

1 online resource (306 p.)

Place of Publication:

London, England ; Philadelphia, Pennsylvania : Jessica Kingsley Publishers, 2016.

Language Note:

English

Summary:

Advocating for dementia for 20 years, Christine Bryden has been instrumental in ensuring that people with dementia are included in discussions about the condition and how to manage and think about it. This collection of her hard-hitting and inspiring insider presentations demands 'nothing about us, without us!' and promotes self-advocacy and self-reflection. Provocative and insightful, the pieces included in the book address issues that demand attention, and will change the way dementia is perceived, and the lives of people with dementia and their families.

Contents:

Nothing About Us ,Without Us! - 20 years of dementia advocacy by Christine Bryden; Introduction; 1. Dementia diagnosis - 'pointing the bone' (March 2001); 2. Diagnosis, drugs and determination (October 2001); 3. An insider's view of dementia (October 2003); 4. Dementia diagnosis from an 'insider's' perspective (August 2004); 5. Dancing with dementia (October 2004); 6. Nothing about us, without us! (October 2004); 7. A bumpy ride (June 2010); 8. The support that I need (August 2010); 9. Stigma and fear (March 2011); 10. I'm still here! (March 2011); 11. Coming out of the shadow (April 2011)

12. A decade of change (May 2011)13. Dreading being put in dementia prison (November 2012); 14. Living life to the full (October 2013); 15. Mind your language - getting it right! (November 2014); 16. There has to be a better way! (November 2014); 17. Come dance with me! (November 2014); 18. Lisa and I (February 2015); 19. Dementia - an interesting ride! (February 2015); 20. Who was I? Who am I now? Who will I be when I die (May 2015); 21. Pastoral care of people with dementia; Index; Blank Page

Notes:

Includes index.

Description based on print version record.

ISBN:

9781784501761

178450176X