The Private Life of the Genome Genetic Information and the Right to Privacy.

Format:

Book

Author/Creator:

Brassington, Iain.

Contributor:

Taylor & Francis eBooks

Samuel Bellet Book Fund.

Language:

English

Subjects (All):

Data privacy.

Physical Description:

1 online resource (219 p.)

Place of Publication:

Milton : Taylor & Francis Group, 2023.

Contents:

Intro

Half Title

Title Page

Copyright Page

Contents

Acknowledgements

Introduction: Unzipped Genes

Notes

Part I: Presumptions and Foundations

1. Genes and Information-Sharing

i. Two Cases

ii. Features of a ""Standard Model"" of Bioethics

iii. Confinement, Unconfinement, Privacy, and Publicity

iv. ABC Revisited

v. Genetic Exceptionalism?

2. What Is Privacy?

i. Entanglements

ii. Privacy versus Confidentiality

iii. The Secret

iv. The Taboo

v. Moving On

Part II: A Sceptic's Tour of Genetic Privacy Rights

3. Rights to Know and Duties Not To

i. Self and Other

ii. Cora's Right to Know

iii. Some Implications of Informational Privilege

iv. The Gerry and Terry Problem

v. The Arguments against Knowing

vi. Who Violates Privacy?

vii. What Follows?

4. What Is a Privacy Right?

i. Privacy and Privacy Rights

ii. Kinds of Privacy Right

(a) Privacy as the Right to Be Let Alone

(b) Privacy as Control over Access to Self

(c) Privacy as Control over Personal Information

iii. Privacy and Property

iv. Stepping Back

Notes

5. Other Ways to Think about Privacy Rights

i. Pulling and Pushing

ii. Push Normativity

iii. Assessing Push-Privacy

iv. Eliminativism and Reductionism

v. Reductionism and Genetic Information

vi. Reducing Reductionism

6. Privacy and Reasons to Disclose

i. From Theories to Norms

ii. The Joint Account Model

iii. Which Interests?

iv. An Obvious Exclusion

v. Genes and Discrimination

vi. Contractual Fairness

vii. Relevant Persons' Relevant Interests

viii. Profit and Profiteering

ix. Insurance and Taboo?

x. Other Rights of Access

Xi. Rights, Claims, and Parsimony

Part III: Rebuilding Genetic Privacy Rights

7. Reinventing Privacy

i. Sense and Reference and Rights

ii. Principlism and Respect for Autonomy

iii. Non-Maleficence and Beneficence

iv. Justice

v. Power and the Limits of Justice

vi. Principles of Honour: Humility and Fidelity

vii. The Principle of Solidarity

viii. The Uses of Solidarity

ix. Bringing Privacy Back

8. Reinvention and Regulation

i. Recapitulation

ii. The Language of Rights

iii. Exceptionalism and Unconfinement, Again

iv. Reading Rights

(A) Direct-to-Consumer Genetic Testing

(b) Third-Party Access

(c) Duties to Warn

v. Legal Rights and the Challenge of Specificationism

vi. Professional Guidance

vii. Privacy Rights, Reconstructed

Index

Notes:

Description based upon print version of record.

Electronic reproduction. London Available via World Wide Web.

Local Notes:

Acquired for the Penn Libraries with assistance from the Samuel Bellet Book Fund.

Other Format:

Print version: Brassington, Iain The Private Life of the Genome

ISBN:

9781000863796

1000863794

Publisher Number:

99994373878

Access Restriction:

Restricted for use by site license.