A rare disease patient registry / Jaan Elias, Gwen Kinkead, Greg Licholai.

Format:

Book

Author/Creator:

Elias, Jaan, author.

Kinkead, Gwen, 1951- author.

Licholai, Greg, author.

Series:

SAGE Business cases.

SAGE Business cases

Language:

English

Subjects (All):

Nonprofit organizations--Case studies.

Nonprofit organizations.

Health facilities, Proprietary--Case studies.

Health facilities, Proprietary.

Physical Description:

1 online resource.

Place of Publication:

London : Yale School of Management, 2021.

Summary:

Michael Hund, CEO of Epidermolysis Bullosa Research Partnership (EBRP), had arrived at a fork in the road. He faced a decision on the structure of an entity he had created with help from a cloud computing industry leader for a database of health information about Americans struggling with epidermolysis bullosa (EB). Should he spin out the new entity from EBRP into a for-profit venture? He had offers from venture capitalists and investors to capitalize a for-profit company. Or should he stay with the tried-and-true model for medical charities and establish a non-profit to hold the database? Both options offered opportunities and challenges.

Notes:

Originally Published InElias, J., Kinkead, G., & Licholai, G. (2021). A Rare Disease Patient Registry. 20-035. New Haven, CT: Yale School of Management, Yale University.

Description based on XML content.

ISBN:

1-5297-9698-9

9781529796988

OCLC:

1289632304