Reframing disability and quality of life : a global perspective / Narelle Warren, Lenore Manderson, editors.

Format:

Book

Contributor:

Warren, Narelle.

Manderson, Lenore.

Series:

Social indicators research series ; v.52.

Social indicators research series ; v.52

Language:

English

Subjects (All):

Sociology of disability.

Quality of life.

Physical Description:

1 online resource (253 p.)

Edition:

1st ed. 2013.

Place of Publication:

Dordrecht ; New York : Springer, c2013.

Language Note:

English

Summary:

Chronic conditions and physical impairments can take a psychological, social and economic toll, and are assumed to diminish a person’s quality of life. But ‘quality of life’ is an ambiguous phrase. Some use the term as an indicator for successful and high quality health services, including good access to medical attention and surgery; others use the term to argue against medical interventions that are seen to prolong life for its own sake. The meaning of ‘quality of life’ varies from person to person, and so is contextually fluid: it may be shaped by health status, presence or absence of pain, happiness and acceptance, or fluctuations in social and economic status. The authors in this book offer a unique and timely collection of papers that address many of these issues, in the context of the lived experience and subjective wellbeing of people with a range of medical conditions from very different cultural and economic environments. In doing so, they address the limits of psychometric measurement and the challenges in generating information about quality of life and wellbeing at both individual and population levels. Authors confront the obstacles of interpreting health outcomes among people of different cultures, ages, genders and health statuses, so supplementing quantitative data with rich ethnographic discussion and illustrating the value of mixed methods research. This book is fundamental to the emerging debates related to individual health outcomes. In striving to understand the broader contextual factors of chronic illness and disability, this volume will contribute to our knowledge of the services, support systems and infrastructure that provide a higher quality of life to people, regardless of their physical health, capability and functioning.

Contents:

Preface and Acknowledgements

List of Tables

List of Figures

Prologue - Devva Kasnitz

Reframing disability and quality of life: Contextual nuances - Narelle Warren and Lenore Manderson

Stroke and aphasia in a South African Township - Carol Legg and Claire Penn

Disability and wellbeing in Northern Nigeria - Elisha P. Renne

Children’s dignity of life: How to evaluate bodies’ (im)permeability - Rafael Wainer

Who, how and what? Quality of life and cancer research - Helle Ploug Hansen and Tine Tjørnhøj-Thomsen

Quality of life and end of life decisions after brain injury - Athena Demertzi, Olivia Gosseries, Didier Ledoux, Steven Laureys and Marie-Aurélie Bruno

Kidney transplantation in Cyprus: A culture of constructing and reconstructing normality - Costas S. Constantinou

Spinal cord injury, sport, and the narrative possibilities of posttraumatic growth - Andrew C. Sparkes and Brett Smith

Narrating a return to work after spinal cord injury - Carolyn Smith-Morris, Gilberto Lopez, Lisa Ottomanelli and Lance Goetz

Sports, disability and the re-framing of the post-injury soldier - Seth D. Messinger

Care, dependency and quality of life - Lenore Manderson and Narelle Warren

Disability and caregivers’ inability among immigrant Australians - Victoria Team and Milica Markovic

The impact of government on quality of life for people with disabilities in the U.S. and Guatemala - Erica Skogebo Edwards

About the authors

Index.

Notes:

Description based upon print version of record.

Includes bibliographical references and index.

ISBN:

1-299-40796-X

94-007-3018-7

OCLC:

833365139