The Palgrave Handbook of Disabled Children’s Childhood Studies / edited by Katherine Runswick-Cole, Tillie Curran, Kirsty Liddiard.

Format:

Book

Contributor:

Runswick-Cole, Katherine, Editor.

Curran, Tillie., Editor.

Liddiard, Kirsty., Editor.

Language:

English

Subjects (All):

Social medicine.

Sociology.

Social groups.

Health, Medicine and Society.

Sociology of Family, Youth and Aging.

Local Subjects:

Health, Medicine and Society.

Sociology of Family, Youth and Aging.

Physical Description:

1 online resource (XXIV, 661 p. 34 illus., 26 illus. in color.)

Edition:

1st ed. 2018.

Place of Publication:

London : Palgrave Macmillan UK : Imprint: Palgrave Macmillan, 2018.

Summary:

Disabled children’s lives have often been discussed through medical concepts of disability rather than concepts of childhood. Western understandings of childhood have defined disabled children against child development ‘norms’ and have provided the rationale for segregated or ‘special’ welfare and education provision. In contrast, disabled children’s childhood studies begins with the view that studies of children’s impairment are not studies of their childhoods. Disabled children’s childhood studies demands ethical research practices that position disabled children and young people at the centre of the inquiry outside of the shadow of perceived ‘norms’. The Palgrave Handbook of Disabled Children’s Childhood Studies will be of interest to students and scholars across a range of disciplines, as well as practitioners in health, education, social work and youth work.

Contents:

Introduction; Katherine Runswick-Cole, Tillie Curran and Kirsty Liddiard

Part 1: Experience and Building Understandings

1. The Texting Project; Blair Manns and Sarah Manns

2. The Tree of Participation: our thoughts about growing a culture of participation between young people, parents and health team staff; Jennifer McElwee, David Cox, Tony Cox, Rosemary Holland, Thomas Holland, Theresa Mason, Chloe Pearce, Caroline Sobey, Julie Bugler, Andy James and Beverley Pearce

3. “What can I say?”; Wendy Merchant and Jamie Merchant

4. The Heaviest Burdens and Life’s Most Intense Fulfilment: a retrospective and re-understanding of my experiences with childhood liver disease and transplantation; Sophie Savage

5. My Sister, My World: from second Mum to Nurse; Rebecca Whitehead

6. Being a Disabled Woman and Mum: my journey from childhood; Jo Skitteral

7. Going ‘off grid’: A mother’s account of refusing disability; Kim Davies

Part 2: Research Studies

Part 2.1: Research Involving Disabled Children and Young People

8. The social relational model of Deaf childhood in action; Kristin Snoddon and Kathryn Underwood

9. Shared Perspectives: the embodiment of disabled children and young people’s voices about participating in recreational activities; Dawn Pickering.-10. Making Space for the Embodied Participation of Young Disabled Children in a Sure Start Children's Centre; Heloise Maconochie

11. Interrogating the ‘normal’ in the 'inclusive' early childhood classroom: silence, taboo and the ‘elephant in the room’; Karen Watson

12. The kids are alright—they have been included for years; Ben Whitburn

13. Expressive eyebrows and beautiful bubbles: Playfulness and children with profound impairments; Debby Watson, Alison Jones and Helen Potter

14. My Friends and Me. Friendship and identity following acquired brain injury in young people; Sandra Dowling, Roy McConkey, Marlene Sinclair

15. Thinking and Doing Consent and Advocacy in Disabled Children’s Childhood Studies Research; Jill C. Smith

Part 2.2: Research Involving Parents of Disabled Children, Young people and Adult Children

16. The Making of a ‘maternal commons;: re-thinking motherhood through disability; Katherine Runswick-Cole and Dan Goodley

17. Autism and Gender in Context: intersectionality in research with fathers of children with the label of autism; Joanne Heeney

18. The construction of life trajectories: reflections, research and resolutions for young people with behavioural disabilities;Tania Watson

19. Personalisation and Parents: the formalisation of family care for adult children with learning disabilities in England ; Barbara Coles

Part 3: Ethics and values

20. Anonymity, Confidentiality and Informed Consent: exploring ethical quandaries and dilemmas in Research with and about disabled children’s childhoods; Liz Thackray

21. Supporting Families in Raising Disabled Children to Enhance African Child Development; Judith McKenzie and Tsitsi Chataika

22. Normalcy, Intersectionality and Ableism: teaching about and around ‘inclusion’ to future educators; Jenny Slater and Elizabeth Chapman

23. “Just Sumaira: Not Her, Them or It”; Sumaira Nasseem

Part 4: Theory and Critical Ways of Thinking

24. What’s wrong with ‘special’? Thinking differently in New Zealand teacher education about disabled children and their lives; Gill Rutherford and Jude MacArthur

25. A Diversity of Crip Childhoods: Considering the Looked After Childhood; Luke Jones and Kirsty Liddiard

26. A Relational Understanding of Language Impairment - children's experiences in the context of their social worlds; Helen Hambly

27. Resilience in the Lives of Disabled Children: a Many Splendoured Thing; Katherine Runswick-Cole, Dan Goodley and Rebecca Lawthom

28. Growing up disabled: Impairment, familial relationships and identity; Brian Watermeyer

29. Autistic development, trauma and personhood: beyond the frame of the neoliberal individual; Damian Milton

Part 5: Changing Practice and Policy

30. Making policy for whom? The significance of the ‘psychoanalytic medical humanities’ for policy and practice that affects the lives of disabled children;Harriet Cooper

31. Disabled Children’s Childhood Studies and Leadership as Experts by Experience: the case for learning activism in health and social care;Tillie Curran, Ruth Sayers and Barry Percy-Smith

32. Being a Speech and Language Therapist: between support and oppression;Anat Greenstein

33. “You say .. I hear”: epistemic gaps in Practitioner-parent/carer talk; Nick Hodge and Katherine Runswick-Cole

34. Disabled Children in Out-of-Home Care: issues and challenges for practice; Berni Kelly, Sandra Dowling and Karen Winter

35. Easy Targets: Seen and not heard - The silencing and invisibility of disabled children and parents in post-reform Aotearoa New Zealand; Rod Wills

36. Family Voices in Teacher Education; Peggy Gallagher, Cheryl Rhodes and Karen Young Lewis

37. Rights not needs: changing the legal model for special educational needs; Debbie Sayers

Concluding Thoughts and Future Directions; Kirsty Liddiard, Tillie Curran and Katherine Runswick-Cole. .

Notes:

Includes bibliographical references and index.

ISBN:

9781137544469

1137544465