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We the scientists : how a daring team of parents and doctors forged a new path for medicine / Amy Dockser Marcus.
Van Pelt Library RJ399.L95 M37 2023
By Request
- Format:
- Book
- Author/Creator:
- Marcus, Amy Dockser, author.
- Language:
- English
- Subjects (All):
- Niemann-Pick diseases--Treatment.
- Niemann-Pick diseases.
- Rare diseases--Patients.
- Rare diseases.
- Genetic disorders in children--Patients--Family relationships.
- Genetic disorders in children.
- Parents of children with disabilities.
- Rare Diseases--therapy.
- Niemann-Pick Disease, Type C--therapy.
- Community-Based Participatory Research.
- Parent-Child Relations.
- Parents.
- Disabled Children.
- Medical Subjects:
- Rare Diseases--therapy.
- Niemann-Pick Disease, Type C--therapy.
- Community-Based Participatory Research.
- Parent-Child Relations.
- Parents.
- Disabled Children.
- Physical Description:
- xxx, 222 pages ; 22 cm
- Other Title:
- How a daring team of parents and doctors forged a new path for medicine
- Place of Publication:
- New York : Riverhead Books, 2023.
- Summary:
- "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"-- Provided by publisher.
- Contents:
- Machine generated contents note: 1. The Here and Now
- 2. A Different Fear
- 3. The Fishing Expedition
- 4. The Catalysts
- 5. The Opera Singer
- 6. The Broad Jump
- 7. New Hit
- 8. Reverberations
- 9. Persuasion
- 10. The Greater Good
- 11. Complications
- 12. The Community's Drug
- 13. Lilies and Doves
- 14. The Cathedral of Science.
- Notes:
- Includes bibliographical references and index.
- Other Format:
- Online version: Dockser Marcus, Amy. We the scientists
- ISBN:
- 9780399576133
- 0399576134
- OCLC:
- 1317834366
- Publisher Number:
- 99992924952
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