Palliative care : transforming the care of serious illness / editors, Diane E. Meier, Stephen L. Isaacs, Robert G. Hughes ; foreword by Risa Lavizzo-Mourey.

Format:

Book

Author/Creator:

Lavizzo-Mourey, Risa, author of introduction, etc.

Contributor:

Meier, Diane E., editor.

Isaacs, Stephen L., editor.

Hughes, Robert G., Ph. D., editor.

Series:

Robert Wood Johnson Foundation series on health policy.

Robert Wood Johnson Foundation Series on Health Policy

Language:

English

Subjects (All):

Palliative treatment.

Physical Description:

1 online resource (467 pages).

Edition:

First edition.

Place of Publication:

San Francisco, California : Jossey-Bass, 2010.

Summary:

Palliative Care is the first book to provide a comprehensive understanding of the new field that is transforming the way Americans deal with serious illness. Diane E. Meier, M.D., one of the field's leaders and a recipient of a MacArthur Foundation "genius award" in 2009, opens the volume with a sweeping overview of the field. In her essay, Dr. Meier examines the roots of palliative care, explores the key legal and ethical issues, discusses the development of palliative care, and presents ideas on policies that can improve access to palliative care. Dr. Meier's essay is followed by reprints of twenty-five of the most important articles in the field. They range from classic pieces by some of the field's pioneers, such as Eric Cassel, Balfour Mount, and Elizabeth Kübler-Ross, to influential newer articles on topics such as caregiving and cost savings of palliative care. The reprints cover a wide range of topics including: Why the care of the seriously ill is so important Efforts to cope with advanced illness Legal and ethical issues Pain management Cross-cultural issues Philosophical perspective The demand for palliative care has been nothing short of stunning-largely because of palliative care's positive impact on both the quality and the cost of care provided to seriously ill individuals. By providing a wide-ranging perspective on this growing field, this book will serve as a guide for developing meaningful approaches that will lead to better health care for all Americans.

Contents:

Cover

Title Page

Copyright

Contents

Foreword

Editors' Introduction

Acknowledgments

Review of the Palliative Care Field: Original Article

The Development, Status, and Future of Palliative Care

Care of the Seriously Ill: Why Is It an Important Issue?

Efforts to Cope with Death and Provide Care for the Dying

Social, Legal, and Ethical Concerns Leading to Change in the Care of Persons with Serious Illness

Research on Care of the Seriously Ill

Private Sector Philanthropy as Catalyst of Social Change

The Growth of Palliative Care

The Family Caregiver

Explaining the Rapid Growth of Palliative Care: Quality and cost

The way Forward

Back to Basics: What are the Ends of Medicine? what are the Ends of a Society?

Chapter 1 Approaching Death: Improving Care at the End of Life

Summary

Context and Trends

Concepts and Principles

Caring at the end of Life: Dimensions and Deficiencies

Recommendations and Future Directions

Conclusion

Chapter 2 Decisions Near the End of Life

Definitions

Ethical Framework

Withholding and Withdrawing Life-Sustaining Treatment

Providing Palliative Treatments that may have Fatal side Effects

Euthanasia

Physician-Assisted Suicide

Conclusions

References

Chapter 3 Hope

Chapter 4 The Nature of Suffering and the Goals of Medicine

Person" is not "Mind

An Impending Destruction of Person

A Simplified Description of the Person

The Nature of Suffering

The Amelioration of Suffering

When Suffering Continues

Author's Acknowledgments.

Chapter 5 The Nature of Suffering and the Goals of Nursing

Cassell's Foundational work on the Nature of Suffering

The Need for a Unique Analysis of Nursing and Suffering

Methods Used for this Work

The Unique Relationship of the Patient and Nurse

The Context of Cancer

Suffering in Cancer Survivorship

Suffering in Advanced Cancer

The Nature of Suffering and the Goals of Nursing

Chapter 6 Death: "The Distinguished Thing

Editor's Introduction

Chapter 7 Access to Hospice Care: Expanding Boundaries, Overcoming Barriers

Challenges of End-of-Life Suffering

Characteristics of Hospice Valued by Consumers

Approaching Just Access: Recommendations

Social, Legal, and Ethical Issues

Chapter 8 The Health Care Proxy and the Living Will

Historical Context

Addressing the Limitations of the Living Will

The Move to Designate Health care Proxies

Implementing Laws Regarding Health Care Proxies

Adding to the Document Designating a Proxy

Limits of the Concept of the Health care Proxy

The Responsibility of Physicians

Appendix: A Model Health Care Proxy for Use In Massachusetts

Chapter 9 Terri Schiavo: A Tragedy Compounded

Research into End-of-Life Care

Chapter 10 A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients

Methods

Results

Comment

Chapter 11 Factors Considered Important at the End of Life by Patients, Family, Physicians, and Other Care Providers

Funding/Support

Disclaimer

Acknowledgment.

Chapter 12 Use of Hospitals, Physician Visits, and Hospice Care During Last Six Months of Life Among Cohorts Loyal to Highly Respected Hospitals in the United States

Introduction

Discussion

Ethical Approval

Contributors

Funding

Competing Interests

Chapter 13 Family Perspectives on End-of-Life Care at the Last Place of Care

Corresponding Author and Reprints

Author Contributions

Study Concept and Design

Acquisition of Data

Analysis and Interpretation of Data

Drafting of the Manuscript

Critical Revision of the Manuscript for Important Intellectual Content

Statistical Expertise

Obtained Funding

Administrative, Technical, or Material Support

Study Supervision

Role of Sponsor

Acknowledgment

Author Affiliations

Palliative Care

Chapter 14 The Treatment of Cancer Pain

Epidemiology

Types of Pain

Management of Cancer Pain

Therapeutic Approaches

Supportive Care

Chapter 15 Responding to Intractable Terminal Suffering

Case Presentation

The Clinical Problem

Definition of the Practices

Moral and Legal Status

Clinical Guidelines

Clinical Practicalities

The Authors and Members and Staff of the ACP-ASIM END-OF-LIFE Care Consensus Panel

Grant Support

Chapter 16 Response to Quill and Byock, "Responding to Intractable Terminal Suffering

Issues and Perspectives

Chapter 17 Challenges in Palliative Care

Challenge I: Community-Related Challenges

Challenge II. Patient-Related Challenges.

Challenge III. Family-Related Challenges

Challenge IV. Caregiver-Related Challenges

Chapter 18 Outcomes from a National Multispecialty Palliative Care Curriculum Development Project

Chapter 19 Negotiating Cross-Cultural Issues at the End of Life: "You Got to Go Where He Lives

Perspectives

Culture and Medical Care

Patient Autonomy: The Dominant Culture, the Dominant Mode

Final Choices by an Elderly African American Couple

Final Choices by a Chinese American Family

Evaluating and Addressing Cultural Issues at the end of Life

Chapter 20 Variability in Access to Hospital Palliative Care in the United States

Addendum

Author Disclosure Statement

Chapter 21 Do Palliative Consultations Improve Patient Outcomes?

Conflict of Interest

Sponsor's Role

Chapter 22 Cost Savings Associated with U.S. Hospital Palliative Care Consultation Programs

Correspondence

Statistical Analysis

Administrative, Technical, and Material Support

The Palliative Care Leadership Centers' Outcomes Group

Financial Disclosure

Care Giving.

Chapter 23 The Loneliness of the Long-Term Care Giver

Chapter 24 Understanding Economic and Other Burdens of Terminal Illness: The Experience of Patients and Their Caregivers

Conception and Design

Analysis and Interpretation of the Data

Drafting of the Article

Critical Revision of the Article for Important Intellectual Content

Final Approval of the Article

Obtaining of Funding

Administrative, Technical, or Logistic Support

Collection and Assembly of Data

The Ends of Medicine and Society

Chapter 25 Finding Our Way

The Editors

Index

EULA.

Notes:

Includes bibliographical references and index.

Description based on print version record.

Description based on publisher supplied metadata and other sources.

ISBN:

1-118-03964-5

OCLC:

884725736