2 options
Embodied narratives : protecting identity interests through ethical governance of bioinformation / Emily Postan.
- Format:
- Book
- Author/Creator:
- Postan, Emily, 1973- author.
- Series:
- Cambridge Bioethics and Law.
- Cambridge bioethics and law
- Language:
- English
- Subjects (All):
- Medical records--Access control--Psychological aspects.
- Medical records.
- Personal information management--Psychological aspects.
- Personal information management.
- Patients--Psychology.
- Patients.
- Identity (Psychology).
- Data privacy.
- Medical records--Law and legislation.
- Physical Description:
- 1 online resource (xiv, 296 pages) : digital, PDF file(s).
- Edition:
- 1st ed.
- Place of Publication:
- Cambridge ; New York, NY : Cambridge University Press, 2022.
- Language Note:
- English
- Summary:
- Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing - and not accessing - bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.
- Contents:
- Attending to identity
- Mapping the landscape
- Narrative self-constitution
- Bioinformation in embodied identity narratives
- Encounters with bioinformation : three examples
- Locating identity interests
- Responsibilities for disclosure
- Identity in the governance landscape.
- Notes:
- Title from publisher's bibliographic system (viewed on 05 Jul 2022).
- ISBN:
- 9781108599931
- 1108599931
- 9781108682992
- 1108682995
- 9781108652599
- 110865259X
- OCLC:
- 1291595698
- Access Restriction:
- Open Access. Unrestricted online access
The Penn Libraries is committed to describing library materials using current, accurate, and responsible language. If you discover outdated or inaccurate language, please fill out this feedback form to report it and suggest alternative language.