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Making their days happen : paid personal assistance services supporting people with disability living in their homes and communities / Lisa I. Iezzoni.
- Format:
- Book
- Author/Creator:
- Iezzoni, Lisa I., author.
- Language:
- English
- Subjects (All):
- Home health aides--Employment--United States.
- Home health aides.
- Home health aides--Government policy--United States.
- Home health aides--Supply and demand--United States.
- Home care services--United States.
- Home care services.
- People with disabilities--Home care.
- Home care services--Employees.
- Supply and demand.
- Government policy.
- Home health aides--Supply and demand.
- United States.
- Home care services--Employees--Government policy--United States.
- Home care services--Employees--Supply and demand--United States.
- People with disabilities--Home care--United States.
- People with disabilities.
- Physical Description:
- 1 online resource : illustrations
- Place of Publication:
- Philadelphia : Temple University Press, 2022.
- [Place of publication not identified] : [publisher not identified], [2022]
- System Details:
- text file
- Summary:
- Most Americans--even those with significant disability--want to live in their homes and communities. Unpaid family members or friends often work as "informal" caregivers, helping those who need assistance-- and many feel they have no option but to serve. In contrast, paid personal assistance services workers (PAS) provide a lifeline to those consumers with complex needs and limited social networks. However, there is a crisis looming in the increasing needs for paid PAS and the limited available PAS workforce. Making Their Days Happen explores disability, health, and civil rights, along with relevant federal and state labor policies related to personal assistance services. Lisa Iezzoni addresses the legal context of paid PAS as well as financing mechanisms for obtaining home-based personal assistance. She also draws upon interviews she conducted with paid PAS consumers and PAS workers to explore PAS experiences and their perspectives about their work. -- Offering recommendations for improving future experiences of PAS consumers and providers, Iezzoni emphasizes that people with disabilities want to be a part of society, and PAS workers who do this low-wage work find satisfaction in helping them achieve their goals.
- Contents:
- 1 What's Needed? p. 1
- I Policy and Social Contexts
- 2 Where People with Disability Live and Recognizing Their Civil Rights p. 13
- 3 Paying for Home-Based Personal Assistance Services p. 34
- 4 Paid Personal Assistance Services Workforce and Labor Policies p. 51
- II Introduction to PAS Consumers and PAS
- 5 Consumers of Personal Assistance Services p. 67
- 6 People Providing Personal Assistance Services p. 84
- III Approaches to Providing Paid PAS
- 7 Personal Assistance Services from Agencies p. 101
- 8 Self-Directed Personal Assistance Services p. 121
- IV Experiences and Perceptions of Receiving and Providing PAS
- 9 Relationships and Intimacy p. 141
- 10 Trust and Respect p. 160
- 11 Physical and Emotional Safety p. 174
- 12 Money Matters p. 192
- V Making PAS Happen
- 13 Finding a Good Fit p. 209
- 14 PAS in the Future p. 233.
- Notes:
- Includes bibliographical references and index.
- Electronic reproduction. Ann Arbor, MI Available via World Wide Web.
- Description based on online resource; title from digital title page (viewed on January 04, 2022).
- Other Format:
- Print version: Iezzoni, Lisa I. Making their days happen
- ISBN:
- 9781439920770
- 143992077X
- Publisher Number:
- 99989363225
- Access Restriction:
- Restricted for use by site license.
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