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End-of-life care for children and adults with intellectual and developmental disabilities / edited by Sandra L. Friedman and David T. Helm ; foreword by Allen C. Crocker.
Van Pelt Library R726.8 .E5323 2010
Available
- Format:
- Book
- Language:
- English
- Subjects (All):
- Terminal care.
- People with mental disabilities--Care.
- People with mental disabilities.
- Developmentally disabled--Care.
- Developmentally disabled.
- Persons with Mental Disabilities.
- Terminal Care--ethics.
- Adult.
- Bioethical Issues.
- Child.
- Medical Subjects:
- Persons with Mental Disabilities.
- Terminal Care--ethics.
- Adult.
- Bioethical Issues.
- Child.
- Physical Description:
- xix, 369 pages : illustrations ; 27 cm
- Place of Publication:
- Washington, DC : American Association on Intellectual and Developmental Disabilities, [2010]
- Summary:
- End-of-life care is the only major reference to systematically explore the unique medical, social, legal, political, and ethical issues to consider while providing care to adults and children with intellectual and developmental disabilities who are facing terminal illness or life-limiting conditions.
- Contents:
- Constructing a "good death" : historical and social frameworks / David T. Helm and Sandra L. Friedman
- End-of-life policies and practices / Anne L. Botsford and Angela King
- Ethical foundations and legal issues / Judith Levy and Maureen van Stone
- Complex medical problems affecting life and life span in children / Sandra L. Friedman
- Medical conditions in adults near the end of life / Marc T. Emmerich
- Medical treatment and management at the end of life / Julie Hauer
- Nutrition issues in end-of-life care / Sari Edelstein, Sharon Weston, and Vanessa Ludlow
- Practical guide to health care decision making / Betsy B. Johnson
- Do-not-resuscitate orders and redirection of treatment / Jeffrey P. Burns and Christine Mitchell
- Ethical issues in the withdrawal of support : charting a course between Scylla and Charybdis / Peter J. Smith and John J. Hardt
- Forgoing nutrition in infants and children with intellectual disabilities / Robert M. Veatch
- The persistent vegetative state / David L. Coulter
- Applying the dignity-conserving model / Zana M. Lutfiyya and Karen D. Schwartz
- End of life through a cultural lens / Tawara Goode and Patricia Maloof
- Spirituality issues and strategies : crisis and opportunity / William Gaventa
- Struggling with grief and loss / Kenneth J. Doka
- Use of person-centered planning for end-of-life decision making / Leigh Ann C. Kingsbury
- Supports and resources for families of children with special health care needs / Lauren C. Berman and SoYun Kwan
- Supports and resources for adults / Teresa A. Savage [and others]
- Palliative care and pain management : resources for direct care providers / Amy C. Stevens, Anne-Marie Barron, and Patricia N. Rissmiller.
- Notes:
- Includes bibliographical references and index.
- ISBN:
- 9781935304074
- 1935304070
- OCLC:
- 502393623
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