Researching health together : engaging patients and stakeholders, from topic identification to policy change / editor, Emily B. Zimmerman.

Format:

Book

Contributor:

Zimmerman, Emily, editor.

Clarence J. Marshall Memorial Library Fund.

Language:

English

Subjects (All):

Medicine--Research--Methodology.

Medicine.

Health--Research--Methodology.

Health.

Community-Based Participatory Research--methods.

Stakeholder Participation.

Biomedical Research.

Research Design.

Medical Subjects:

Community-Based Participatory Research--methods.

Stakeholder Participation.

Biomedical Research.

Research Design.

Physical Description:

xv, 477 pages : illustrations ; 26 cm

Place of Publication:

Thousand Oaks, California : SAGE Publications, Inc., [2021]

Summary:

"The challenges of addressing health disparities, the ethical imperative to include stakeholders in research, and the slow transition of research evidence into practice are all driving a movement towards more community-based and participatory approaches to research. Researching Health Together brings together authors who have produced innovative methodologies or demonstration projects focused on different stages of the research process, from question development to evaluation and translation"-- Provided by publisher.

Contents:

Part I Stakeholder Engagement in Research Topic Identification and Modeling p. 23

Chapter 1 Grassroots to Grasstops: A Stepwise Approach to Identify Community Health Priorities p. 25 / Ann M. Cheney and Christina M. Reaves and Mary Figueroa and Alejandra Cabral and Greer Sullivan

Chapter 2 Deliberative Engagement of Communities in Decisions About Research Spending (DECIDERS) p. 45 / Susan Dorr Goold and Zachary E. Rowe and Karen Calhoun

Chapter 3 Group Model Building as a Community Engagement Strategy p. 72 / Faustine Williams and Peter S. Hovmand and Kurt C. Stange

Chapter 4 The SEED Method: A Multi-Level Stakeholder Approach to Research Question Development and Prioritization p. 92 / Emily B. Zimmerman and Sarah K. Cook

Part II Stakeholder Engagement in Research Design p. 117

Chapter 5 The Community Engagement Studio: Tapping Into the Lived Experience of Community Members to Enhance Research p. 119 / Yvonne A. Joosten and Tiffany Israel and Leah Dunkel and Jacqueline Sims and Consuelo Hopkins Wilkins

Chapter 6 The History of PCORnet p. 141 / Kimberly Marschhauser and Claudia Grossmann and Maryan Zirkle

Chapter 7 Partners, Not Participants: Engaging Patients in the American BRCA Outcomes and Utilization of Testing (ABOUT) Network p. 158 / Marleah Dean and Sue J. Friedman and Rebecca Sutphen and Beth Ann Bourquardez Clark and Debra Duquette and Lisa F. Rezende

Chapter 8 Engagement Methods for Practice-Based Research Networks and the Challenges With Health Information Technology Implementation p. 174 / Alex Krist and Paulette Lail Kashiri and J. Eric Peele and Gary Iwamoto and Colin Banas and Jon Puro

Part III Implementing Stakeholder-Engaged Research p. 193

Chapter 9 Free Range Humans: Engaging Patients, Practices, Providers, and People on the High Plains p. 195 / John M. Westfall and Linda Zittleman and Maret Felzien and High Plains Research Network (HPRN) Community Advisory Council

Chapter 10 Engaging Stakeholders in Implementation of Evidence-Based Programs p. 216 / Annette Boaz and Allison Metz

Chapter 11 Communities Engaged and Advocating for a Smoke-free Environment (CEASE) p. 230 / Payam Sheikhattari and Jummai Apata and Laurie Bezold and Lisa Bleich and Fernando A. Wagner

Chapter 12 Translating Evidence to Policy: A Case Study of the San Francisco Soda Tax p. 250 / Roberto Vargas and Casey N. Palmer and James Rouse Iñiguez and Paula Fleisher and Christina Goette and Brittni Chicuata and Sarah Campbell Fine and Eric Mar and Vanessa Bohm and Laura A. Schmidt

Part IV Stakeholder Engagement in Health and Health Systems Interventions p. 281

Chapter 13 Comparative Effectiveness Research: Stakeholder Engagement for a Comprehensive Perspective p. 283 / Kelly Williams and Tracy Carney and Jane Kogan and James Schuster

Chapter 14 Achieving Patient-Centered Health Care Innovation Through Stakeholder Engagement p. 302 / L. Ebony Boulware and Patti L. Ephraim and Teri Browne and Tara Strigo and Felicia Hill-Briggs and Jamie Green and Chelsie Hauer

Chapter 15 Community Engagement in an Urban AIAN Community to Address Diabetes Prevention p. 323 / Lisa G. Rosas and Jan J. Vasquez and Jill Evans and Rhonda McClinton-Brown and Alberto Ojeda and Matilda Owaleon-Ojeda and Wayne Scott Waters and Robert E. Garcia

Chapter 16 Boot Camp Translation p. 339 / Linda Zittleman and Ashley Espinoza and John M. Westfall

Part V Governance, Evaluation, and Ethics in Stakeholder-Engaged Research p. 361

Chapter 17 Building the Proper Foundation: Governance for Stakeholder-Engaged Research p. 363 / Holly L. Peay and Elizabeth L. Cope and Elizabeth Horn and Madelaine E. Faulkner and Thomas W. Carton and Megan O'Boyle and Lorraine B. Johnson

Chapter 18 Evaluating Engagement: Does the Involvement of Stakeholders Improve Research? p. 376 / Thomas W. Concannon

Chapter 19 Collaborating to Evaluate: The Sí Texas Partnership-Centered Evaluation Model p. 393 / Michelle K. Brodesky and Karen Errichetti and M. Marten Ramirez and San Juana Martinez-Gomez and Stephanie Tapia and Lisa Wolff and Mary V. Davis

Chapter 20 Ethics Considerations When Involving Patients as Partners in Health Research p. 413 / Donald J. Willison and Michael McDonald.

Notes:

Includes bibliographical references and index.

Local Notes:

Acquired for the Penn Libraries with assistance from the Clarence J. Marshall Memorial Library Fund.

ISBN:

9781544351063

1544351062

OCLC:

1112792724