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"Save my kid" : how families of critically ill children cope, hope, and negotiate an unequal healthcare system / Amanda M. Gengler.
- Format:
- Book
- Author/Creator:
- Gengler, Amanda M., author.
- Language:
- English
- Subjects (All):
- Critically ill children--Medical care--United States.
- Critically ill children.
- Critically ill children--Family relationships.
- Parents of terminally ill children--Psychology.
- Parents of terminally ill children.
- Catastrophic illness--Social aspects--United States.
- Catastrophic illness.
- Child health services--United States.
- Child health services.
- Catastrophic illness--Social aspects.
- Medical care.
- United States.
- Health services accessibility--United States.
- Health services accessibility.
- Health Services Accessibility.
- Critical Illness.
- Child.
- Medical Subjects:
- Health Services Accessibility.
- Critical Illness.
- Child.
- United States.
- Physical Description:
- 1 online resource (xiii, 241 pages.)
- Other Title:
- Save my kid
- Place of Publication:
- New York : New York University Press, [2020]
- System Details:
- text file
- Contents:
- Hope is a thing with feathers
- Studying families of critically ill children
- Care-captaining : climbing the rungs of the U.S. healthcare system
- Care-entrusting : staying on the medical sidelines
- Blending and switching care strategies
- When everything is not enough
- The fragility and tenacity of hope
- Emotionally perilous paths : illness management, emotion management, and the production of healthcare inequalities.
- Notes:
- Includes bibliographical references and index.
- Electronic reproduction. Ipswich, MA Available via World Wide Web.
- Description based on print version record.
- Local Notes:
- Acquired for the Penn Libraries with assistance from the Cosslett Yaeger Family Endowment for Health Science Studies.
- ISBN:
- 9781479834327
- 1479834327
- Publisher Number:
- 99985428984
- Access Restriction:
- Restricted for use by site license.
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