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Genetic testing : accounts of autonomy, responsibility, and blame / Michael Arribas-Ayllon, Srikant Sarangi, and Angus Clarke.
- Format:
- Book
- Author/Creator:
- Arribas-Ayllon, Michael.
- Series:
- Genetics and society.
- Genetics and society
- Language:
- English
- Subjects (All):
- Genetic screening--Moral and ethical aspects.
- Genetic screening.
- Medical genetics.
- Physical Description:
- 1 online resource (219 p.)
- Edition:
- 1st ed.
- Place of Publication:
- London ; New York : Routledge, 2011.
- Language Note:
- English
- Summary:
- "Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals. This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail"--Provided by publisher.
- Contents:
- Front Cover; Genetic Testing; Copyright Page; Contents; Acknowledgements; List of abbreviations; 1. Introduction; 2. Genetic testing: technology in context; 3. Neo-liberalism and the new genetics; 4. Rhetorical discourse analysis; 5. Personal genomics and the media; 6. Family accounts of genetic responsibility; 7. Accounts of genetic testing in the clinic; 8. Professional accounts of ethical challenges in the prenatalgenetics clinic; 9. Conclusion; Appendix: transcription conventions; Notes; Bibliography; Index
- Notes:
- Description based upon print version of record.
- Includes bibliographical references and index.
- ISBN:
- 1-134-02628-5
- 1-283-45813-6
- 9786613458131
- 1-134-02629-3
- 0-203-89138-4
- 9780203891384
- OCLC:
- 798532826
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