Health Care for People with Intellectual and Developmental Disabilities across the Lifespan / edited by I. Leslie Rubin, Joav Merrick, Donald E. Greydanus, Dilip R. Patel.

Format:

Book

Contributor:

Rubin, Isadore Leslie, editor.

Merrick, Joav, 1950- editor.

Greydanus, Donald E., editor.

Patel, Dilip R., editor.

SpringerLink (Online service)

Series:

Medicine (Springer-11650)

Language:

English

Subjects (All):

Medicine.

Quality of life--Research.

Quality of life.

Clinical psychology.

Health Promotion and Disease Prevention.

Quality of Life Research.

Clinical Psychology.

Family.

Local Subjects:

Health Promotion and Disease Prevention.

Quality of Life Research.

Clinical Psychology.

Family.

Physical Description:

1 online resource (LX, 2307 pages) : 266 illustrations, 170 illustrations in color

Edition:

First edition 2016.

Contained In:

Springer eBooks

Place of Publication:

Cham : Springer International Publishing : Imprint: Springer, 2016.

System Details:

text file PDF

Summary:

This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd, and much expanded edition, of a text that was first published by Rubin and Crocker in 1989 (Lea and Fibiger). The second edition was published by Rubin and Crocker in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the "Bible" in the field of health care for people with IDD since 1989 when the first edition came out. .

Contents:

Foreword; David Satcher

Tribute to Allan Crocker; I. Leslie Rubin

Introduction to the volume; I. Leslie Rubin

Part I. Systems of Delivery Health Care

Chapter 1. Introduction to Intellectual and Developmental Disabilities; Dilip R. Patel, Donald Greydanus, Joav Merrick and I. Leslie Rubin

Chapter 2. Health is More Than Medicine; Donald J. Lollar and Randall A. Phelps

Chapter 3. Health of Health Care for People with Intellectual and Developmental Disability; Wendy M. Nehring and Brandi Lindsey

Chapter 4. Family Centered Care

4.1. Family Centered Care in a Health Care Setting; Catherine de Haas and Ruth Ryan

4.2. Siblings of Children and Adults with Intellectual and Developmental Disability; Monica McCaffrey

4.3. Grandparents as Caregivers for Grandchildren with Intellectual and Developmental Disabilities; LaShawnDa Pittman, Janice Nodvin and Maeve Howett

4.4. Aging Parents; Nancy S. Jokinen

4.5. Rights of Individuals with Disability to Parenthood; Karen McKenzie, Laura Shewan and Suzanne Wilson

4.6. Foster Care; Julie Dini

4.7. Transitioning Youth to Adult Health Care: A Person-Centered and Culturally Competent Approach; Stacey Ramirez, Staeshe Collins and Brenda Liz Muñoz

Chapter 5. Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities across the Lifespan; Georgina Peacock and Cheryl Rhodes

Chapter 6. International Classification of Function; Margaret Kyrkou

Chapter 7. Systems of Health Care Delivery

7.1. Clinical Settings for Health Care Delivery; Stephen B. Sulkes

7.2. Reaching the Unserved and Underserved: Medical Care in Rural and Urban Settings; Daniel Crimmins and Akilah Heggs

7.3. International Perspectives on the Delivery of Health Care; David O ́Hara

7.4. Health Care Financing; David Ervin

7.5. Systems of Health Care Delivery: Community Setting; Rosemary M. Caron

7.6. Models for Care for Children with Medical Complexity; Melinda Morin, Justin Alvey, Nancy Murphy and Laurie Glader

7.7. School Settings; Jeffrey Okamoto

7.8. Health Care Transition; David Wood, Linda R. Edwards and Brian Hennen

7.9. Community Healthcare; David A. Ervin and Brian Hennen

7.10. Nursing Home Settings; Nursing Home Settings; Sandra Friedman

7.11. Current and Emerging Trends for Residential Supports for Persons with Intellectual and Developmental Disabilities and the Impact of Managed Care Initiatives; James Conroy, Steven J. Dale and Robert McCaffrey

7.12. Large Residential Facilities; Norberto Alvarez

7.13. Community Nursing; Joan Earle Hahn and Laura E. Fox. 7.14. Medical Home; Liz Grier

Chapter 8. Principles of Care and Ethics; Peter J. Smith

Chapter 9. Practicalities of Care. 9.1. Practicalities of Care for Adults with Ïntellectual and Developmental Disabilities; Peter Lindsay and Matt Hoghton.' 9.2. Electronic Medical Records; Stephen B. Sulkes

Chapter 10. Intellectual Disability and the Environment

10.1. The Environment; J. Carolyn Graff and Jeffrey A. Foran

10.2. Fetal Environment and Risks for Intellectual and Developmental Disabilities; I. Leslie Rubin

Chapter 11. Built Environments for Improving Human Development and Promoting Health and Quality of Life; Chris Kochtitzsky and Michele Crachiola

Chapter 12. Public Health Perspectives on Intellectual and Developmental Disabilities; Gloria L. Krahn and Michael H. Fox

Chapter 13. International Perspectives

13.11. Systems of Delivery of Health Care for Persons with Developmental Disabilities: The Case of Belgium; Koen Hermans and Anja Declerq

13.2. Service for People with Intellectual Disability in the United Kingdom; Hardeep Uppal and Vee P. Prasher

13.3. People with Developmental Disabilities in the United States of America; Gloria L. Krahn and Lynda B. Bersani

Chapter 13.4. Former Soviet Union; Naira Avetisyan

13.5. Health and Social Services for People with Intellectual and Developmental Disabilities in Taiwan; Kuo yu Wang

13.6. Intellectual Disability in India: Recent Trends in Care and Services; Satish C. Girimaji and John VS Kommu

13.7. Hong Kong, PRC; Ben MF Law and Daniel TL Shek

13.8. Israel; Joav Merrick and Mohammed Morad

13.9. Canada; Ian Casson, Theresa Broda, Jessica Jones, Alvin Loh, Bruce McCreary, Ullanda Niel and C. Ruth Wilson

13.10. Organization of Services and Life-Long Health Care: Japan; Shigeru Suemitsu and Susumu Uehara

13.11. Special-Needs Education, Special Care, and Education for Physicians in Finland; Markus Kaski

13.12. South America. A Service Example from Lima, Peru; Liliana Mayo and Judith M. LeBlanc

13.13. Status of Legislation and Services in Turkey across the Lifespan; Kerim M. Munir

13.14. Service Organization and Support for People with Intellectual and Developmental Disabilities in the Netherlands; Frans VPM Ewals and Sylvia A Huisman

13.15. International Perspectives: Chile; Rosario Moore, Patricia M Valenzuela, Maria A Paul and Macarena Lizama

13.16. Services for Persons with Intellectual and DEvelopmental Disabilities in Italy; Fabrizio Fea

13.17. Denmark. A Historic Journey; Joav Merrick, Peter Uldall and Jakob Volther

13.18. Service and Care in Australia; Robert W. Davis

13.19. Africa; I Leslie Rubin

Part II. Clinical Care

Chapter 14. Developmental and Functional Evaluation and Assessment; Dilip R. Patel and Cora M. Taylor

Chapter 15. Communication with Patients, Parents and Other Caregivers; Sheridan Forster

Chapter 16. Inborn Errors of Metabolism

16.1. Newborn Screening; Geoffrey R. DeTolve

16.2. The Mucopolysaccharoidoses; Robert Conway

16.3. The Sphingolipidoses; Robert Conway

16.4. Mitochondrial Disorders; Frances D. Kendall

Chapter 17. Genetics and Genetic Syndromes.' 17.1. What is New in Genetics and Genomics?; Helga V. Toriello

17.2. Autism and Genetics; Helga V. Toriello

17.3. 22q11.2 Deletion Syndrome: A Paradigmatic Copy-Number-Variant (CNV) Disorder; Joseph F. Cubells

17.4. Genetic Counseling; Sarah L. Klemm and Jennifer Fulbright

Chapter 18. Syndromes

18.1. Down Syndrome; Brian G. Skotko and Ariel Tenenbaum

18.2. Fragile X. Syndrome; Emma Hare, Reymundo Lozano, Lindsey Partington and Randi J. Hagerman

18.3. Rett Syndrome: Seeing the Way Forward; Alan K. Percy

18.4. Prader Willi Syndrome; Randell Alexander

18.5. Williams Syndrome; Elaine Pereira, Robert Marion and Barbara R. Pober

18.6. Angelman Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson

18.7. Smith-Magenis Syndrome; Donald E. Greydanus and Joav Merrick

18.8. Noonan Syndrome; Jacqueline A. Noonan

18.9. Phakomatoses; Bruce Korf

18.10. Spina Bifida; Robert A. Jacobs, Alexis Deavonport, Kathryn Smith and Alex Van Speybroeck

18.11. Fetal Alcohol Syndrome; Ariel Tenenbaum, Isaiah Wexler and Joav Merrick

18.12. Other Syndromes

18.12.1. Lowe Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson

18.12.2. Nager Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson

18.12.3. Sturge-Weber Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson

18.12.4. Klinefelter Syndrome; Vandana Raman

18.12.5. Cornelia de Lange Syndrome; Elizabeth Poplawski

Chapter 19. Prematurity and Ist Consequences; I. Leslie Rubin

Chapter 20. Cerebral Palsy; Sarah Winter

Chapter 21. Neurological Disorder

21.1. Congenital Anomalies of the Brain; Ayelet Halevy, Osnot Konen and Aviva Mimouni-Bloch

21.2. Epilepsy; Norberto Alvarez

21.3. Sleep disorders; Norberto Alvarez

21.4. Movement Disorders; Paula D. Ravin

21.5. Dementia and Alzheimer's Disease; Norberto Alvarez

21.6. Peripheral Nerve Disorders; Norberto Alvarez

Chapter 22. Physiatry and Function

22.1. Pediatric Aspects of Physiatry and Function; Joshua Vova and Maurice G. Sholas

22.2. Psychiatry and Function: Common Issues in Adults with Intellectual and Developmental Disabilities; Dale C. Strasser, Laura Jones and Mitchel Leavitt

Chapter 23. Developmental Therapies and Functional Assistance

23.1. Allied Health Professionals; Meir Lotan

23.2. Occupational Therapy; Sharon A. Cermak and Ann E. Borreson

23.3. Physical Therapy; Priscilla S. Osborne and Meir Lotan

23.4. Speech Language Pathology: Supports to Communication; John M. Costello and Howard C. Shane

Chapter 24. Health Promotion; James H. Rimmer and Kelly Hsieh

Chapter 25. Orthopaedic Considerations; Karen M.

Bovid and Dilip R. Patel

Chapter 26. Dermatology; Brian P. Pollack, Leslie P. Lawley, Jenna Streicher, Jason Hadley and Jack L. Arbiser

Chapter 27. Eye and Vision Care; Laura Gwatkin

Chapter 28. Dentistry; Ilan Feldberg and Joav Merrick

Chapter 29. Otolaryngology

29.1 Hearing Impairment; Peter Chung, Shibani Kanungo and Dilip R. Patel

29.2 Otolaryngology; Michael McWay and Colleen Dodich

Chapter 30. Gastrointestinal Issues; Orhan Atay

Chapter 31. Nutrition; Dawna Torres Mughal and Patricia Novak

Chapter 32. Feeding Aspects; Laura Minando and Elana M Bern

Chapter 33. Endocrine Issues; Rachel-Marie A. Cazeau and Manmohan K. Kamboj

Chapter 34. Urological Concerns; Julian Wan

Chapter 35. Cardiology

35.1 Congenital Heart Disease and Down Syndrome; Kenneth J. Dooley

35.2 Congenital Heart Disease; Shiva Sharma

Chapter 36. Pulmonology, Sleep Disordered Breathing and Sleep Apnea; Charles A. McCaslin and John Norman Schuen

Chapter 37. Women's Health; Stephanie J. Stockburger and Hatim A. Omar

Chapter 38. Men's Health; Joav Merrick and Mohammed Morad

Chapter 39. Sexuality; Sorah Stein and Mitch Tepper

Chapter 40. Cancer and Oncology; Walid Kaddan and Joav Merrick

Chapter 41. Severe and Profound Intellectual Disability

41.1 Care; Margaret Kyrkou

41.2 Psychological Well-Being of Children and Adults with Severe and Profound Intellectual and Developmental Disabilities; Fleur-Michelle M Coiffait and Alexandra T Leedham

Chap.

Other Format:

Printed edition:

ISBN:

978-3-319-18096-0

9783319180960

Access Restriction:

Restricted for use by site license.