Data matters : ethics, data, and international research collaboration in a changing world / Susan Sauer Sloan and Joe Alper, rapporteurs.

Format:

Book

Contributor:

Sloan, Susan Sauer, rapporteur.

Alper, Joe, rapporteur.

Language:

English

Subjects (All):

Research--International cooperation.

Research.

Research--Methodology.

Research--Moral and ethical aspects.

Physical Description:

1 online resource (90 pages)

Edition:

1st ed.

Place of Publication:

Washington, DC : The National Academies Press, [2018]

Summary:

In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training. International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated data-this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well. A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domains-all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.

Contents:

Intro

FrontMatter

Acknowledgement of Reviewers

Acronyms and Abbreviations

Contents

1 Introduction and Overview

2 Privacy, Security, and Confidentiality of Data Sharing and Storage

3 Emerging Technologies and the Social Landscape

4 Reports from the Breakout Sessions

5 Final Thoughts and Next Steps

References

Appendix A: Workshop Agenda

Appendix B: Statement of Task

Appendix C: Guiding Questions for the Breakout Sessions

Appendix D: Speaker and Moderator Biographies.

Notes:

Description based on print version record.

ISBN:

0-309-48250-X

0-309-48248-8