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The drama of DNA : narrative genomics / Karen H. Rothenberg and Lynn Wein Bush.
- Format:
- Book
- Author/Creator:
- Rothenberg, Karen H., 1952- author.
- Bush, Lynn W., author.
- Language:
- English
- Subjects (All):
- Genomics.
- Drama.
- Physical Description:
- 1 online resource (241 p.)
- Edition:
- 1st ed.
- Place of Publication:
- New York : Oxford University Press, 2014.
- Language Note:
- English
- Summary:
- Through the use of dramatic narratives, The Drama of DNA brings to life the complexities raised by the application of genomic technologies to health care and diagnosis. This creative, pedagogical approach shines a unique light on the ethical, psychosocial, and policy challenges that emerge as comprehensive sequencing of the human genome transitions from research to clinical medicine. Narrative genomics aims to enhance understanding of how we evaluate, process, and share genomic information, and to cultivate a deeper appreciation for difficult decisions encountered by health care professionals,
- Contents:
- Cover; The Drama of DNA; Copyright; Contents; Foreword; Preface; A Note from the Authors; Chapter 1 Setting the Genomic Stage; Part oneNarrative Genomics; Chapter 2 Anticipating the Future; Scene I: The IRB Meeting; Scene II: The Genomic Advisory Committee; Additional Questions; Chapter 3 Informing the Future; Scene I: The Informed Consent Process; Scene II: The Return of Genomic Findings; Additional Questions; Chapter 4 Reframing an "Open Future"; Scene I: The Paradoxes of NBSeq; Scene II: The Practical Concerns in Pandora's Box; Additional Questions; Part tWOIntegrating Narrative Genomics
- Chapter 5 Reconceptualizing the Past, Present, & FutureScene I: The IRB Deliberation; Scene II: The Informed Consent Process; Scene III: The Clinical Ethics Consultation; Scene IV: The Return of Genomic Findings; Part ThreeNarrative Genomics on Stage; Chapter 6 Dramatizing the Past, Present, & Future; Section I: The Theatrical Double Helix and "Chromozones"; Section II: Mapping and Manipulating Fate; Section III: The Genomic Crystal Ball in the Post-Mapping Decade; References; Bibliography
- Notes:
- Description based upon print version of record.
- Includes bibliographical references.
- Description based on print version record.
- ISBN:
- 0-19-937315-9
- 0-19-937316-7
- 0-19-930936-1
- OCLC:
- 874961281
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