When children die : improving palliative and end-of-life care for children and their families : [popular summary] / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors.

Format:

Book

Contributor:

Field, Marilyn J. (Marilyn Jane)

Behrman, Richard E., 1931-

Language:

English

Subjects (All):

Terminally ill children--Care.

Terminally ill children.

Terminally ill children--Family relationships.

Palliative treatment.

Physical Description:

1 online resource (16 p.)

Edition:

1st ed.

Place of Publication:

Washington, D.C. : National Academy Press, c2003.

Language Note:

English

Summary:

This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.

Contents:

""What is palliative care?""; ""When children need palliative care.""; ""Why it can be hard to get palliative care.""; ""We can give very ill children the palliative care they need.""; ""1. Children should have care that is focused on their needs and the needs of their families.""; ""2. Health plans should make it easier for children and families to get palliative care.""; ""3. Health care professionals should be trained to give palliative care to children.""; ""4. Researchers should find out more about what care works best.""

""We can improve palliative care for very ill children and their families.""""A word to families . . .""; ""We can improve palliative care for very ill children and their families.""

Notes:

"This document is a brief summary of the Institute of Medicine report entitled "When Children Die: Improving Palliative and End-of-Life Care for Children"." -- p.ii

ISBN:

1-280-17936-8

9786610179367

0-309-52841-0

OCLC:

923259546