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The bleeding disease : hemophilia and the unintended consequences of medical progress / Stephen Pemberton.
- Format:
- Book
- Author/Creator:
- Pemberton, Stephen Gregory.
- Language:
- English
- Subjects (All):
- Hemophilia--Complications.
- Hemophilia.
- Hemophilia--United States--History.
- Physical Description:
- 1 online resource (398 p.)
- Edition:
- 1st ed.
- Place of Publication:
- 2011.
- Baltimore : Johns Hopkins University Press, 2011.
- Language Note:
- English
- Summary:
- Ironically, transforming the hope of a normal life into a purchasable commodity for people with bleeding disorders made it all too easy to ignore the potential dangers of delivering greater health and autonomy to hemophilic boys and men.
- Contents:
- Introduction : hemophilia as pathology of progress
- The emergence of the hemophilia concept
- The scientist, the bleeder, and the laboratory
- Vital factors in the making of a masculine world
- Normality within limits
- The hemophiliac's passport to freedom
- Autonomy and other imperatives of the health consumer
- The mismanagement of hemophilia and AIDS
- Conclusion : the governance of clinical progress in a global age.
- Notes:
- Bibliographic Level Mode of Issuance: Monograph
- Includes bibliographical references (pages 305-363) and index.
- Description based on online resource; title from PDF title page (ebrary, viewed December 5, 2013).
- ISBN:
- 9781421404424
- 1421404427
- OCLC:
- 798295750
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