Achieving justice in genomic translation : re-thinking the pathway to benefit / edited by Wylie Burke ... [et al.].

Format:

Book

Contributor:

Burke, Wylie.

Language:

English

Subjects (All):

Human genetics--Research--Moral and ethical aspects.

Human genetics.

Genomics--Research--Moral and ethical aspects.

Genomics.

Genetic screening--Moral and ethical aspects.

Genetic screening.

Physical Description:

1 online resource (223 p.)

Edition:

1st ed.

Place of Publication:

Oxford ; New York : Oxford University Press, 2011.

Language Note:

English

Summary:

This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce

Contents:

Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards

The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler

The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton

The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards

Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra

The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards

Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke

Genomics and the health commons / Nora Henrikson and Wylie Burke

Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards

The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts

What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards

Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.

Notes:

Description based upon print version of record.

Includes bibliographical references and index.

Description based on metadata supplied by the publisher and other sources.

ISBN:

1-283-42793-1

9786613427939

0-19-990974-1

OCLC:

769344036