When science offers salvation : patient advocacy and research ethics / Rebecca Susan Dresser.

Format:

Book

Author/Creator:

Dresser, Rebecca Susan, author.

Series:

Oxford scholarship online.

Oxford scholarship online

Language:

English

Subjects (All):

Medical ethics.

Patient advocacy.

Medicine--Research--Moral and ethical aspects.

Medicine.

Physical Description:

1 online resource (228 p.)

Edition:

1st ed.

Place of Publication:

New York ; Oxford University Press, 2023.

Language Note:

English

Summary:

In examining how advocates have transformed health research, the author of this study examines patient advocacy through the lens of research ethics.

Contents:

Intro

Contents

Preface

1. Patient Advocacy and the Changing Research Environment

Recurring Themes

Advocacy in Context

Language and Point of View

2. Advocates on the Research Team-Shaping and Assessing Science

Origins

Advocacy's Potential Contributions

Doubts and Questions

Effective and Ethical Community Participation

3. Hope Versus Hypothesis Testing: Expanded Access to Experimental Interventions

The Path to Expanded Access

Access Policies: The Underlying Trade-Offs

Toward Ethically Defensible Access Programs

4. Fairness in Allocating Government Research Funds

Criteria for Research Priority Setting

The Priority-Setting Process

Problems with Priority Setting

Distributive Justice Considerations

Difficulties in Evaluating the Fairness of NIH Allocation: An Illustration

Procedural Justice Considerations

Devising a Fairer Priority-Setting System

5. Public Participation in Allocating Government Research Funds

The Emergence of Research Funding Advocacy

Ethical and Policy Implications of Funding Advocacy

A Deliberative Democratic Approach to Funding Allocation

6. Advocates in Research Ethics Oversight: A Voice for the Public?

Policies on Public Ethics Oversight

Public Participation Aims

The Gap Between Aspiration and Reality

Advocates in Research Ethics Deliberations

7. Advocacy for Accuracy in Research Reporting

Reporters and Scientists in the Spotlight: Two Illustrations

Pressures to Exaggerate Research Implications

The Primacy of Truthtelling

Advocates As Reform Catalysts

8. Research Advocacy Today and Tomorrow

Old Themes Revisited

Advocacy and Ethics: The Case for Collaboration

Ethical Principles for Research Advocacy

Preparing for Advocacy's Next Phase

Notes

Index

A

B

C

D

E

F

G

H

I

J

K.

L

M

N

O

P

R

S

T

U

V

W

X.

Notes:

Previously issued in print: 2001.

Includes bibliographical references and index.

Derived record based on print version record and publisher information.

ISBN:

0-19-770925-7

1-280-83523-0

9786610835232

0-19-974895-0

OCLC:

607554932