Living with learning disabilities, dying with cancer : thirteen personal stories / Irene Tuffrey-Wijne; foreword by Sheila Rollins.

Format:

Book

Author/Creator:

Tuffrey-Wijne, Irene, 1963-

Language:

English

Subjects (All):

Cancer--Patients--Great Britain--Biography.

Cancer.

Learning disabled--Great Britain--Biography.

Learning disabled.

Physical Description:

1 online resource (274 p.)

Edition:

1st ed.

Place of Publication:

London ; Philadelphia : Jessica Kingsley, 2010.

Language Note:

English

Summary:

This book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers.

Contents:

FRONT COVER; Living with Learning Disabilities, Dying with Cancer:Thirteen Personal Stories; Contents; ACKNOWLEDGEMENTS; Foreword by Professor Sheila Hollins; PREFACE; Chapter 1:Three Stories; John Davies; Vincent Sweeney; Nick Ballard; Chapter 2: Diagnosis and Treatment; Lily Lamb; The cancer diagnosis; Cancer treatments; Summary; Chapter 3:Truth-telling and Understanding; Lily Lamb's understanding of cancer; Were people told the truth?; Understanding cancer and dying; Sally Burnett: 'Don't tell her'; Breaking bad news; Summary; Chapter 4:Family and Friends; Lily Lamb and her family

The importance of familiesPete Carpenter and his sister Daphne; Friends; Summary; Chapter 5:Unprepared Services, Inexperienced Carers; Lily Lamb and her carers; Pete Carpenter and his carers; Services were not prepared for death; The emotional impact of caring; Health care professionals; Summary; Chapter 6:Dependent Lives; The story of Lily Lamb's life; Deprivation and dependence; Forced jollity; The importance of listening; Summary; Chapter 7:Resilience; Richard Horwood: 'Don't ever give up'; The features of resilience; Summary; Chapter 8:Dying and Beyond; Lily Lamb's death; Dying; Funerals

Grieving and rememberingSummary; Chapter 9:Learning Lessons; What did people want and need?; Conclusion; APPENDIX 1: THE PEOPLE IN THIS BOOK; APPENDIX 2: METHODS; ENDNOTES; RESOURCES; REFERENCES; INDEX

Notes:

Description based upon print version of record.

Includes bibliographical references and index.

ISBN:

9786612554926

9781282554924

1282554921

9780857002006

0857002007

OCLC:

682621358