Learning to live with Huntington's disease : one family's story / Sandy Sulaiman.

Format:

Book

Author/Creator:

Sulaiman, Sandy, 1959-

Language:

English

Subjects (All):

Huntington's disease--Biography.

Huntington's disease.

Huntington's disease--Patients--Family relationships.

Sulaiman, Sandy, 1959---Health.

Sulaiman, Sandy.

Physical Description:

1 online resource (178 p.)

Edition:

1st ed.

Place of Publication:

London ; Philadelphia : Jessica Kingsley Publishers, 2007.

Language Note:

English

Summary:

'This is a moving true story of how people can find the inner strength to rise above it when their world is turned upside down.'. - Richard Branson. Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the su

Contents:

Cover; Title Page; Contents; THANK-YOUS; INTRODUCTION: 'THE MOST CRUEL DISEASE KNOWN TO MAN'; 1. The Eye of the Storm: Sandy's Story; 2. The Lucky One? The Sister's Story; 3. Lost and Found: The Older Son's Story; 4. 'Is Everyone All Right?' The Younger Son's Story; 5. EyesWide Open: The Daughter-in-law's Story; 6. Mopping the Ceiling: The Husband's Story; 7. A Cruel Inheritance: Brian's Story; 8. Tips for Living with Huntington's Disease; APPENDIX: USEFUL RESOURCES; REFERENCES;

Notes:

Description based upon print version of record.

ISBN:

1-281-10540-6

9786611105402

1-84642-630-8

1-4356-0305-2

OCLC:

191925933