Patients as policy actors / edited by Beatrix Hoffman ... [et al.].

Format:

Book

Contributor:

Hoffman, Beatrix Rebecca.

Series:

Critical issues in health and medicine.

Critical issues in health and medicine

Language:

English

Subjects (All):

Patient advocacy--United States.

Patient advocacy.

Medical policy--United States.

Medical policy.

Physical Description:

1 online resource (319 p.)

Edition:

1st ed.

Place of Publication:

New Brunswick, NJ : Rutgers University Press, c2011.

Language Note:

English

Summary:

Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored.

Contents:

Introduction : patients as policy actors / Nancy Tomes and Beatrix Hoffman

Solitary advocates : the severely brain injured and their surrogates / Joseph Fins and Jennifer Hersh

Physician-patient communication in the care of vulnerable populations : the patient's voice in interpersonal policy / M. Robin DiMatteo ... [et al.]

Is it time to push yet? The challenges to advocacy in American childbirth / Elizabeth Mitchell Armstrong and Eugene DeClercq

A pound of flesh : patient legal action for human research protections in the biotech age / Lori Andrews and Julie Burger

From outsiders to insiders : the consumer/survivor movement and

Its impact on American mental health policy / Nancy Tomes

"Don't scream alone" : the health care activism of poor Americans in the 1970's / Beatrix Hoffman

The canary in Gemeinschaft : using the public voice of patients to enhance health system performance / Mark Schlesinger

Patient appeals as policy disputes : individual and collective action in managed care / Marc Rodwin

The power of us : a new approach to advocacy for rare cancers / Amy Dockser Marcus

Patients and the rise of the nurse practitioner profession / Julie Fairman

A house on fire : newborn screening, parents' advocacy, and the discourse of urgency / Rachel Grob

Measuring success : scientific, institutional, and cultural effects of patient advocacy / Steven Epstein.

Notes:

Description based upon print version of record.

Includes bibliographical references and index.

ISBN:

1-283-86436-3

0-8135-5085-8

OCLC:

775872927