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Parents of children with autism : an ethnography / Juliette de Wolfe.
- Format:
- Book
- Author/Creator:
- De Wolfe, Juliette, author.
- Language:
- English
- Subjects (All):
- Parents of autistic children.
- Autistic children--Family relationships.
- Autistic children.
- Autistic Disorder.
- Parent-Child Relations.
- Anthropology, Cultural.
- Parents--psychology.
- Social Stigma.
- Medical Subjects:
- Autistic Disorder.
- Parent-Child Relations.
- Anthropology, Cultural.
- Parents--psychology.
- Social Stigma.
- Physical Description:
- 1 online resource (185 pages.)
- Place of Publication:
- New York, NY : Palgrave Macmillan, 2014.
- System Details:
- text file
- Summary:
- Skyrocketing rates of autism diagnoses have led teams of scientists and researchers to invest extensive amounts of funds and energy in the study of autism genes, causes, and cures. Such research focuses on autism as an entity, not necessarily those affected by autism. Conversely, this book explores the autism world by considering the everyday experiences of living with autism. Displaying the unique perspective of parents of children with autism by recounting parents' stories, this ethnography demonstrates the difficulties of the early moments of becoming an autism parent: obtaining the official diagnosis, receiving Early Intervention services, and navigating relationships with friends, family, and loved ones. Through descriptive field notes from an eighteen-month study, de Wolfe examines the uniqueness of parents' circumstances as they are shaped by their children's diagnosis. Parents of Children with Autism provides an intimate glimpse into the lives of autism parents who advocate tirelessly for and celebrate fully the lives of their children, one day at a time. Book jacket.
- Contents:
- Introduction : going to Holland together
- Anthropologizing experiences of autism
- Meet the parents
- Re-charting territories, redefining roles : the issue of relationships
- Peculiarities and particularities : the issue of bodies
- Navigations and limitations : the issue of institutions
- Sharing and fighting : the issue of communication and education.
- Notes:
- Includes bibliographical references (pages 171-176) and index.
- Electronic reproduction. Palo Alto, Calif. Available via World Wide Web.
- Description based on print version record.
- Other Format:
- ebook version
- ISBN:
- 9781137436238
- 1137436239
- Publisher Number:
- 99969136092
- Access Restriction:
- Restricted for use by site license.
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