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CyberGenetics : health genetics and new media / by Anna Harris, Susan Kelly, Sally Wyatt.
Van Pelt Library RB155.65 .H37 2016
Available
- Format:
- Book
- Author/Creator:
- Harris, Anna (Medical anthropologist), author.
- Kelly, Susan (Susan Elizabeth), author.
- Wyatt, Sally, 1959- author.
- Series:
- Genetics and society (Series)
- Genetics and society
- Language:
- English
- Subjects (All):
- Human chromosome abnormalities--Diagnosis--Computer network resources.
- Human chromosome abnormalities.
- Genetic screening--Computer network resources.
- Genetic screening.
- Genetic screening--Social aspects.
- Internet.
- Computer network resources.
- Human chromosome abnormalities--Diagnosis.
- Physical Description:
- xvi, 157 pages ; 24 cm.
- Other Title:
- Cyber genetics
- Place of Publication:
- Abingdon, Oxon ; New York, NY : Routledge, 2016.
- Contents:
- 1 Introduction: CyberGenetics 1
- Figure 1.1: Direct-to-consumer genetic testing 1
- Box 1.1: Autobiology of a direct-to-consumer genetic testing user 3
- Brief history of direct-to-consumer genetic testing 5
- Brief history of the internet and health online 10
- Intersecting determinisms: when genetic testing goes online 14
- New spaces for health-e relations? 18
- Changing relations of trust: in bodies, expertise, science and technology 21
- Overview of book 25
- Apple falls from the tree by Caoilinn Hughes 27
- References 28
- 2 USERS 34
- Patients-in-waiting 37
- Celebrity users 38
- Non-celebrity users 41
- Potential users and non-users 49
- Conclusion 50
- References 52
- 3 Professionals 56
- Genetic counselling online: co-production of users and technologies 59
- Representations of genetic counselling by direct-to-consumer generic testing companies 62
- Models of genetic counselling provision 63
- Genetic counselling roles 64
- New roles for genetic counsellors 66
- Conclusion 70
- References 72
- 4 Participation 77
- The participatory turn? 78
- Novel methods: the 'research-y' part of 23andMe 80
- 23andMe's 'participatory culture' 82
- Sharing gifts under the genetic family tree 83
- Reciprocal ties 86
- Spitting for free 88
- Conclusion 91
- References 94
- 5 Controversy 99
- Schizophrenia genetics 100
- Controversy goes online 101
- Selling genetic tests online for schizophrenia 103
- Controversy in action: citation, and production, of knowledge 109
- Conclusion 111
- References 113
- 6 Conclusion: CyberGenetic futures 117
- Preventive measures by Caoilinn Hughes 117
- Letters from the lake 119
- GenULuv announces entry to stock market 122
- Online genetic testing: an archaeological assessment 124
- References 129.
- Notes:
- Includes bibliographical references and index.
- ISBN:
- 9781138946514
- 1138946516
- OCLC:
- 933765374
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