Meeting health information needs outside of healthcare : opportunities and challenges / Catherine Arnott Smith and Alla Keselman.

Format:

Book

Author/Creator:

Smith, Catherine Arnott, author.

Contributor:

ScienceDirect (Online service)

Alumni and Friends Memorial Book Fund.

Series:

Chandos information professional series

Language:

English

Subjects (All):

Health literacy.

Medical informatics.

Health Literacy.

Information storage and retrieval systems--Medicine.

Information storage and retrieval systems.

Medical Subjects:

Health Literacy.

Physical Description:

1 online resource (xx, 356 pages.)

Place of Publication:

Waltham, MA : Chandos Publishing, [2015]

System Details:

text file

Summary:

Consumer health information provision, or provision of health information targeting laypeople, is conducted by professionals working in a range of fields, including librarianship, computer science and health information technology, journalism, and health communication. Meeting Health Information Needs Outside Of Healthcare addresses the challenges and ethical dilemmas concerning the delivery of health information to the general public in a variety of non-clinical settings, in person and via information technology, in settings from public and academic libraries to online communities. This book aims to clarify the properties of health information in diverse settings that make it particularly challenging information to provide. Catherine Arnott Smith is an Associate Professor in the School of Library & Information Studies, University of Wisconsin-Madison. She holds a PhD in Library & Information Sciences/Medical Informatics and an MSIS in Information Sciences/Medical Informatics (University of Pittsburgh, 2002 and 2000 respectively), as well as master's degrees in library and information science and American History/archives administration (University of Michigan, both degrees conferred in 1992). Her research interests are consumer health vocabularies and consumer interactions with electronic medical records and personal health records, as well as clinical information exchange in nonclinical spaces, such as public libraries and university disability resources centers. Alia Keselman is a Senior Social Science Analyst in the Division of Specialized Information Services (SIS), National Library of Medicine, United States National Institutes of Health. She holds a PhD in human cognition and learning and an MA in biomedical informatics from Columbia University. Dr. Keselman conducts research into lay understanding of complex health concepts, health literacy, and consumer health informatics, as well as the role of libraries and librarians in providing health information to the public. Dr. Keselman also oversees the development of life sciences and health education resources for K-12 students and teachers. Key Points, Addresses professional challenges and ethical problems of communicating health information, Focuses on health information as a challenge for different professionals providing health information in different settings, Emphasizes shared challenges of information practice across different settings as well as those facing professionals in different roles Book jacket.

Contents:

Overview 1

1 Designing health information programs to promote the health and well-being of vulnerable populations: the benefits of evidence-based strategic health communication / Gary L. Kreps Kreps, Gary L., Linda Neuhauser Neuhauser, Linda 3

1.1 Introduction 3

1.2 Barriers 4

1.3 Lessons learned: improving health communication for vulnerable populations 7

1.4 Strategies to develop strategic communication 8

1.5 Evaluating health communication 12

1.6 Practice implications 13

References 14

2 Health literacy research's growth, challenges, and frontiers / Robert A. Logan Logan, Robert A. 19

2.1 Introduction 19

2.2 Four milestones in health literacy research 20

2.3 Health literacy's evolving definition and conceptual underpinnings 26

2.4 The range and vitality of health literacy research 29

2.5 Health literacy research's current needs and frontiers 30

2.6 Conclusions 33

References 34

Libraries 39

3 Medical information for the consumer before the World Wide Web / Catherine Arnott Smith Smith, Catherine Arnott 41

3.1 Introduction: "Closed to the Public" 41

3.2 Background: the beginnings of consumer health information 44

3.3 Libraries 52

3.4 Librarian 58

3.5 The patron 63

3.6 Content 67

3.7 Conclusions 72

References 73

4 Ethical health information: Do it well! Do it right! Do no harm! / Michelynn McKnight McKnight, Michelynn 77

4.1 Introduction 77

4.2 Responsibility for the best possible information service 78

4.3 The right to privacy and responsibility for confidentiality 83

4.4 Providing fair and equitable access 85

4.5 Intellectual property rights and access to information 87

4.6 Advocacy for information access 88

4.7 Providing information versus giving advice 88

4.8 Conflicting values, dilemmas, and tough decisions 90

4.9 Keep learning 91

References 92

5 Health information resource provision in the public library setting / Mary Grace Flaherty Flaherty, Mary Grace 97

5.1 Background 97

5.2 Challenges 100

5.3 Case study: embedded consumer health librarians in Delaware 110

5.4 Conclusions 112

References 113

6 Who needs a health librarian? Ethical reference transactions in the consumer health library / Nancy C. Seeger Seeger, Nancy C. 117

6.1 Introduction 117

6.2 The reference transaction; asking the right questions, avoiding the wrong answers 120

6.3 Looking for the answers: symptom-checkers and self-diagnosing 126

6.4 What did the doctor say? Health literacy and deciphering a whole new language 133

6.5 When the answers have questions: experimental treatments and integrative medicine 136

6.6 Conclusions 139

References 140

7 Consumer health information: the community college conundrum / Anne Chernaik Chernaik, Anne 143

7.1 The community college setting 144

7.2 Health information needs at the community college 147

7.3 Issues in health information provision 149

7.4 Health literacy in the community college setting 156

7.5 The future for community colleges and health information 157

7.6 Conclusions 163

Appendix A Community and Junior College Libraries Section (CJCLS) of the Association of College and Research Libraries

References 163

Contexts 167

8 Health information delivery outside the clinic in a developing nation: The Qatar Cancer Society in the State of Qatar / Ellen N. Sayed Sayed, Ellen N., Alan S. Weber Weber, Alan S. 169

8.1 Introduction and background 169

8.2 Qatar 170

8.3 Methods 172

8.4 Sources of consumer health information in the GCC 173

8.5 Barriers to health care in Qatar 175

8.6 The Qatar Cancer Society 177

8.7 Cancer information delivery outside the clinical selling 183

8.8 Conclusions 186

Appendix 1 Questionnaire 187

References 187

9 Health information and older adults / Kay Hogan Smith Smith, Kay Hogan 191

9.1 Introduction 191

9.2 Background 191

9.3 Settings: where do older adults go for information? 193

9.4 Health information format considerations 194

9.5 Format summary 197

9.6 Health information comprehension among older adults: barriers and solutions 197

9.7 Comprehension summary 203

References 204

10 Re-envisioning the health information-seeking conversation: insights from a community center / Prudence W. Dalrymple Dalrymple, Prudence W., Lisl Zach Zach, Lisl 209

10.1 Introduction 209

10.2 Understanding information behaviors 210

10.3 Health information seeking in a local context 218

10.4 Conclusions 228

References 231

11 For the mutual benefit: health information provision in the science classroom / Albert Zeyer Zeyer, Albert, Daniel M. Levin Levin, Daniel M., Alia Keselman Keselman, Alia 235

11.1 Background 235

11.2 The science classroom as a setting for health literacy 239

11.3 Challenges and opportunities for bringing health education into the science classroom 248

11.4 Conclusions and implications 256

References 257

12 "You will be glad you hung onto this quit": sharing information and giving support when stopping smoking online / Marie-Thérèse Rudolf von Rohr Rohr, Marie-Thérèse Rudolf von 263

12.1 Introduction 263

12.2 Interpersonal aspects of advice-giving and showing support online 265

12.3 Methodology 270

12.4 Results and discussion 275

12.5 Conclusions 287

References 289

13 Health information in bits and bytes: considerations and challenges of digital health communication / Clare Tobin Lence Lence, Clare Tobin, Korey Capozza Capozza, Korey 291

13.1 Introduction 291

13.2 The health programs 291

13.3 The digital divide 294

13.4 Don't make me think 297

13.5 Humanizing technology 306

13.6 Know your audience 309

13.7 Data dilemmas 311

13.8 Conclusions 314

References 315

14 Does specialization matter? How journalistic expertise explains differences in health-care coverage / Michael W. Wagner Wagner, Michael W. 321

14.1 Introduction 321

14.2 Why specialization should matter 323

14.3 Methodology 324

14.4 Results 330

14.5 Discussion 336

14.6 Conclusions 338

References 338

Afterword 341

Index 347.

Notes:

Electronic reproduction. Amsterdam Available via World Wide Web.

Description based on print version record.

Local Notes:

Acquired for the Penn Libraries with assistance from the Alumni and Friends Memorial Book Fund.

ISBN:

9780081002599

0081002599

Publisher Number:

99966301247

Access Restriction:

Restricted for use by site license.