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The bleeding disease : hemophilia and the unintended consequences of medical progress / Stephen Pemberton.
- Format:
- Book
- Author/Creator:
- Pemberton, Stephen Gregory.
- Language:
- English
- Subjects (All):
- Hemophilia--United States--History.
- Hemophilia.
- Hemophilia A--history.
- History.
- United States.
- Hemophilia A--therapy.
- Blood Transfusion.
- HIV Infections--transmission.
- History, 20th Century.
- Liver Transplantation--trends.
- Medical Subjects:
- Hemophilia A--history.
- United States.
- Hemophilia A--therapy.
- Blood Transfusion.
- HIV Infections--transmission.
- History, 20th Century.
- Liver Transplantation--trends.
- Physical Description:
- xviii, 377 pages : illustrations ; 24 cm
- Place of Publication:
- Baltimore : Johns Hopkins University Press, 2011.
- Summary:
- Pemberton (history, New Jersey Institute of Technology and Rutgers U.) tells a story of medical triumph turned to tragedy, describing how the therapeutic advances that provided sufferers of hemophilia with a semblance of normalcy resulted in nearly nine out of ten "severe hemophiliacs" in the United States acquiring HIV and hepatitis C infections from the blood products they used to control their bleeding during the 1980s. He investigates the development of the technological management of hemophilia in terms of the social and cultural assumptions that influenced the approach taken to the disease, the normative goals of treatment, the framing of the hemophiliac as a health consumer, and the iatrogenic catastrophe of HIV infection. Annotation ©2011 Book News, Inc., Portland, OR (booknews.com)
- Contents:
- Introduction : hemophilia as pathology of progress
- The emergence of the hemophilia concept
- The scientist, the bleeder, and the laboratory
- Vital factors in the making of a masculine world
- Normality within limits
- The hemophiliac's passport to freedom
- Autonomy and other imperatives of the health consumer
- The mismanagement of hemophilia and AIDS
- Conclusion : the governance of clinical progress in a global age.
- Notes:
- Includes bibliographical references and index.
- ISBN:
- 9781421401157
- 1421401150
- OCLC:
- 685111268
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