The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen.

Format:

Book

Contributor:

Widdows, Heather, 1972-

Mullen, Caroline.

Series:

Cambridge law, medicine, and ethics

Language:

English

Subjects (All):

Genetic screening--Moral and ethical aspects.

Genetic screening.

Genetic screening--Government policy.

Privacy, Right of.

Medical records--Access control.

Medical records.

Genetic Privacy--ethics.

Decision Making--ethics.

Genetic Privacy--legislation & jurisprudence.

Public Policy.

Government policy.

Medical Subjects:

Genetic Privacy--ethics.

Decision Making--ethics.

Genetic Privacy--legislation & jurisprudence.

Public Policy.

Physical Description:

xi, 235 pages ; 24 cm.

Place of Publication:

Cambridge, UK ; New York : Cambridge University Press, 2009.

Contents:

The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson

Me, myself, I : against narcissism in the governance of genetic information / Søren Holm

Decisions, consent and expectations of the individual / Caroline Mullen

Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows

Rights, responsibility and stewardship : beyond consent / Roger Brownsword

Who decides what? : relational ethics, genetics and well-being / Sarah Wilson

Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie

Genetic information and public opinion / Andrew Edgar

Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.

Notes:

Includes bibliographical references and index.

ISBN:

9780521509916

0521509912

OCLC:

318871873