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Rethinking informed consent in bioethics / Neil C. Manson, Onora O'Neill.
- Format:
- Book
- Author/Creator:
- Manson, Neil C.
- Language:
- English
- Subjects (All):
- Informed consent (Medical law).
- Bioethics.
- Medicine--Research--Moral and ethical aspects.
- Medicine.
- Medicine--Research.
- Physical Description:
- xiv, 212 pages ; 23 cm
- Place of Publication:
- Cambridge ; New York : Cambridge University Press, 2007.
- Summary:
- Informed consent is a central topic in contemporary biomedical ethics. Yet attempts to set defensible and feasible standards for consenting have led to persistent difficulties. In Rethinking Informed Consent in Bioethics, Neil Manson and Onora O'Neill set debates about informed consent in medicine and research in a fresh light. They show why informed consent cannot be fully specific or fully explicit, and why more specific consent is not always ethically better. They argue that consent needs distinctive communicative-transactions, by which other obligations, prohibitions, and rights can be waived or set aside in controlled and specific ways. Their book offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working in a range of areas in bioethics, medicine and law.
- Contents:
- 1 Consent: Nuremberg, Helsinki and beyond 1
- Beginning at Nuremberg 2
- Extending scope: from research ethics to clinical ethics 4
- Raising standards: explicit and specific consent 6
- Improving justifications: the quest for autonomy 16
- Regulatory reinforcement: consent requirements 22
- 2 Information and communication: the drift from agency 26
- Framing informed consent 27
- Two layers of distortion 34
- Information and the drift from agency 34
- What the conduit and container metaphors hide 38
- 3 Informing and communicating: back to agency 50
- Agency 50
- Communicative actions 54
- Communicative norms 57
- Two 'models' of information and communication 64
- 4 How to rethink informed consent 68
- Introduction: two models of informed consent 68
- Why consent transactions matter: beyond autonomy 69
- Justifying consent transactions: consent as waiver 72
- Scope and standards 77
- Consent transactions: standards for communication 84
- Consent transactions: commitments 90
- Conclusion: consent in practice 94
- 5 Informational privacy and data protection 97
- Informational privacy 100
- Informational rights and obligations 101
- Informational privacy as a right over content 105
- Data protection legislation: second-order informational obligations 111
- Rethinking informational privacy 121
- Confidentiality: regulating communicative action rather than information content 123
- 6 Genetic information and genetic exceptionalism 130
- Questions about genetic information 131
- Genetic privacy and genetic exceptionalism 133
- Is Genetic information contained within DNA? 145
- 7 Trust, accountability and transparency 154
- Consent, paternalism and trust 154
- Placing and refusing trust intelligently 159
- Accountability and trustworthiness 167
- Accountability, trustworthiness and trust in biomedicine 169
- Accountability with transparency 177
- Appendix The structure of accountability 181
- Some conclusions and proposals 183
- Informed consent and epistemic norms 184
- Informed consent and individual autonomy 185
- Informed consent as waiver 187
- Practices and policies for informed consent 189
- After rethinking: the possibility of change 198
- Institutional sources and documents 207.
- Notes:
- Includes bibliographical references (pages 201-206) and index.
- ISBN:
- 9780521874588
- 0521874580
- 9780521697477
- 0521697476
- OCLC:
- 77540852
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