Too late to die young / Harriet McBryde Johnson.

Format:

Book

Author/Creator:

Johnson, Harriet McBryde.

Language:

English

Subjects (All):

Johnson, Harriet McBryde.

People with disabilities--United States--Biography.

People with disabilities.

United States.

Genre:

Biographies.

Autobiographies.

Physical Description:

261 pages ; 22 cm

Edition:

First edition.

Place of Publication:

New York : Henry Holt and Co., 2005.

Summary:

Harriet McBryde Johnson isn't sure, but she thinks one of her earliest memories was learning that she will die. The message came from a maudlin TV commercial for the Muscular Dystrophy Association that featured a boy who looked a lot like her. Then as now, Johnson tended to draw her own conclusions. In secret, she carried the knowledge of her mortality with her and tried to sort out what it meant. By the time she realized she wasn't literally a dying child, she was living a grown-up life characterized by intense engagement with people, politics, work, struggle, and community, and also by a deep appreciation for the ephemeral beauty of life.

Due to a congenital neuromuscular disease, Johnson has never been able to walk, dress, or bathe without assistance. With help, however, she lives life on her own terms, from the streets of Havana, where she covers an international disability rights conference, to the floor of the Democratic National Convention in Chicago, to an auditorium in Princeton, where she defends the value of lives like hers against philosopher Peter Singer. Her idea of fun leads her (as a law student) to take on the Secret Service during a presidential visit, as well as to undertake a last-minute campaign for local political office and to set the world endurance record for telethon protesting. And she may be the thinnest of all the thin women who have been photographed for the cover of The New York Times Magazine.

Too Late to Die Young opens with a lyrical mediation on death and ends with a tough sermon on pleasure. In between, we get the tales Johnson most enjoys telling from her own life. This is not a book "about disability" but it will surprise anyone who has ever imagined that life with a severe disability is inherently worse than another kind of life. As disarmingly bold, funny, and unsentimental as Johnson herself, Too Late to Die Young marks the arrival of an unforgettable American voice.

Contents:

1 Too Late to Die Young 7

2 Hail to the Chief! 18

3 Honk If You Hate Telethons 47

4 What the Hell, Why Not? 76

5 Unconventional Acts 109

6 Trial and Error 133

7 Believing in Dreams 152

8 Getting Thrown 173

9 Unspeakable Conversations 201

10 Art Object 229

11 Good Morning-An Ending 250.

ISBN:

0805075941

OCLC:

56330208

Online:

Publisher description