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The National Bioethics Advisory Commission : contributing to public policy / Elisa Eiseman ; prepared for the National Bioethics Advisory Council.

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Van Pelt Library QH332 .E36 2003
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Format:
Book
Author/Creator:
Eiseman, Elisa.
Contributor:
Rand Corporation.
Language:
English
Subjects (All):
Bioethics--Government policy--United States.
Bioethics.
Medical ethics--Government policy--United States.
Medical ethics.
Medical ethics--Government policy.
Government policy.
United States.
Physical Description:
xxviii, 172 pages ; 23 cm
Place of Publication:
Santa Monica, CA : RAND, 2003.
Summary:
Details goverment, private, and international response to the policy recommendations of the National Bioethics Advisory Commission.
Contents:
Background on the National Bioethics Advisory Commission 1
The NBAC Reports 2
Response to NBAC's Reports and Recommendations 5
Government Response 8
Response from Professional Societies, Organizations, and Foundations 9
International Response 10
Organization of This Report 10
Chapter 2 NBAC in the Public Eye 13
Media Reports That Mention NBAC 13
Publications About NBAC in the Academic Literature 17
Chapter 3 Response to the Cloning Human Beings Report 21
Government Response 22
Response from the President of the United States 23
Response from Congress 25
Response from the Department of Energy 28
Response from the Food and Drug Administration 29
Response from State Government (New Jersey) 30
Response from Professional Societies, Organizations, and Foundations 30
Response from the American Association for the Advancement of Science 31
Response from the American Medical Association 32
Response from the American Society for Cell Biology 33
Response from the American Society for Investigative Pathology 33
Response from the Association of American Medical Colleges 33
Response from the Biotechnology Industry Organization 34
Response from the Federation of American Societies for Experimental Biology 36
Response from The Pew Charitable Trusts 36
Response from the United States Conference of Catholic Bishops 37
International Response 37
Response from Australia 38
Response from the United Kingdom 40
Response from the United Nations Educational, Scientific and Cultural Organization 41
Chapter 4 Response to the Research Involving Persons with Mental Disorders That May Affect Decisionmaking Capacity Report 43
Government Response 44
Response from the President of the United States 45
Response from Congress (Congressional Testimony) 45
Response from the Department of Health and Human Services 46
Response from the Centers for Disease Control and Prevention (NIOSH) 47
Response from the National Institutes of Health 47
Response from State Government 52
Response from Professional Societies, Organizations, and Foundations 53
Response from the Alzheimer's Association 54
Response from the American Academy of Neurology and Amerian Neurological Association 54
Response from the Association of American Medical Colleges 55
International Response 55
Chapter 5 Response to the Research Involving Human Biological Materials: Ethical Issues and Policy Guidance Report 57
Government Response 58
Response from Congress (Legislative Action) 59
Response from the Department of Health and Human Services 60
Response from the Centers for Disease Control and Prevention 60
Response from the Food and Drug Administration 61
Response from the National Institutes of Health 62
Response from the Secretary's Advisory Committee on Genetic Testing 64
Response from State Government (Oregon) 65
Response from Professional Societies, Organizations, and Foundations 65
Response from the Federation of American Societies for Experimental Biology 66
Response from Intermountain Health Care 66
Response from The Online Ethics Center for Engineering and Science 67
International Response 67
Response from the United Kingdom 68
Response from the Organisation for Economic Co-operation and Development 68
Response from Germany 69
Response from Japan 70
Chapter 6 Response to the Ethical Issues in Human Stem Cell Research Report 71
Government Response 74
Response from the President of the United States 75
Response from Congress 77
Response from the Department of Health and Human Services 81
Response from the National Institutes of Health 82
Response from Professional Societies, Organizations, and Foundations 84
Response from the American Association for the Advancement of Science and Institute for Civil Society 85
Response from the American Council on Education, Association of American Universities, and National Association of State Universities and Land-Grant Colleges 87
Response from the American Medical Association 88
Response from the American Society for Cell Biology 89
Response from the Association of American Medical Colleges 89
Response from the Biotechnology Industry Organization 90
Response from the Center for Bioethics and Human Dignity 91
Response from the Endocrine Society 91
Response from the Joint Steering Committee for Public Policy 92
Response from the National Academies 92
Response from the Society for Developmental Biology 93
Response from the United States Conference of Catholic Bishops 93
International Response 94
Response from the United Kingdom 94
Response from the European Parliament 97
Response from the European Group on Ethics in Science and New Technologies to the European Commission 97
Response from the International Bioethics Committee of the United Nations Educational, Scientific and Cultural Organization 98
Response from Canada 99
Response from Germany 100
Response from Japan 101
Response from Slovakia 101
Chapter 7 Response to the Ethical and Policy Issues in International Research: Clinical Trials in Developing Countries Report 103
Government Response 104
Response from the National Institutes of Health 105
Response from Professional Societies, Organizations, and Foundations 106
Response from the American Association for the Advancement of Science 106
Response from the American Medical Association 107
Response from Public Citizen 108
International Response 109
Response from the United Kingdom 110
Response from the Global Forum for Bioethics in Research 110
Chapter 8 Response to the Ethical and Policy Issues in Research Involving Human Participants Report 113
Government Response 116
Response from Congress 117
Response from the Department of Health and Human Services 120
Response from the Centers for Disease Control and Prevention 121
Response from the National Institutes of Health 122
Response from the Veterans Health Administration 123
Response from Professional Societies, Organizations, and Foundations 124
Response from the Alliance for Human Research Protection 124
Response from the American Association for the Advancement of Science 125
Response from the American Medical Association 126
Response from the Association of American Medical Colleges 126
International Response 126
Canada 127
Appendix Data Collection Methods 139.
Notes:
"MR-1546."
Includes bibliographical references (pages 145-172).
ISBN:
0833033646
OCLC:
52086189

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