Family-centered care : putting it into action : the SPN/ANA guide to family-centered care.

Format:

Book

Contributor:

Society of Pediatric Nurses.

American Nurses Association.

Series:

ANA publication ; FCC-23.

Language:

English

Subjects (All):

Pediatric nursing.

Family nursing.

Family--psychology.

Family Nursing.

Professional-Family Relations.

Sibling Relations.

Medical Subjects:

Family--psychology.

Family Nursing.

Professional-Family Relations.

Sibling Relations.

Physical Description:

x, 126 pages : forms ; 26 cm

Other Title:

SPN/ANA guide to family-centered care

Place of Publication:

Washington, D.C. : Society of Pediatric Nurses : American Nurses Association, 2003.

Summary:

Co-developed by the Society of Pediatric Nurses and the American Nurses Association, this practice-focused handbook is built around family-centered care. This FCC model and standard of pediatric healthcare practice focuses on the child within the context of the child's family as a unit, not on the ill or injured child alone. As such, it applies to the care of children and their families across settings and across specialties of neonatal, child, and adolescent healthcare. Evidence-based in its comprehensive literature search and grounded in an expansive concept of family, this guide is a primary reference for any administrator, clinician, educator, or researcher involved in pediatric health care. It is organized by the eight elements of family-centered care as originally described by the Association for the Care of Children's Health (see below) and accompanying practice recommendations. This guide was developed with the assistance of panel of pediatric experts convened by the Society of Pediatric Nurses and input from the Institute for Family-Centered Care. It complements Scope and Standards of Pediatric Nursing Practice, also co-published by SPN and ANA.

Contents:

1 The Elements of Family-Centered Care and Their Practice Recommendations 1

Element 1 The Family at the Center 1

Element 2 Family-Professional Collaboration 2

Element 3 Family-Professional Communication 3

Element 4 Diversity of Families 4

Element 5 Coping Differences and Support 5

Element 6 Family-Centered Peer Support 5

Element 7 Specialized Service and Support Systems 5

Element 8 Holistic Perspective of Family-Centered Care 6

2 The Historical Basis of Family-Centered Care 7

What Are the Roots of Family-Centered Care? 7

Who Is Family? 9

What Is Family-Centered Care? 10

What Are the Strategies of Family-Centered Care? 12

3 The Evidence Basis for Family-Centered Care Elements and Practice Recommendations 13

Element 1 The Family at the Center 13

1.1 Therapeutic Relationships 14

1.2 Comprehensive Family Assessments 15

1.3 Siblings in Family Assessments and Interventions 17

1.4 Sibling Involvement: Information 19

1.5 Sibling Involvement: Participation 21

1.6 Extended Family Members 23

Element 2 Family-Professional Collaboration 24

2.1 Mutual Participation Model of Care 24

2.2 Parental and Patient Decision-Making Roles 24

2.3 Unlimited Parental Access 26

2.4 Parental Presence During Procedures and Tests 28

2.5 Parental and Family Necessities 32

2.6 Parental Expertise Facilitation 33

2.7 Family Roles in Quality Assessment/Improvement 34

2.8 Family and Child Advisory Groups 34

Element 3 Family-Professional Communication 36

3.1 Facilitation of Mutual Communication 36

3.2 Facilitation of Family Input 38

Element 4 Cultural Diversity of Families 39

4.1 Culturally Competent Care 40

4.2 Family Beliefs and Practices 42

4.3 Family Religious and Spiritual Beliefs and Practices 43

4.4 Family Equity and Access Issues 44

4.5 Culturally Competence of Healthcare Providers 45

Element 5 Coping Differences and Support 46

5.1 Coping Support Roles for Healthcare Providers 46

5.2 Family Needs and Acceptance of Support 49

Element 6 Family-Centered Peer Support 52

6.1 Family Support Resources and Programs 52

6.2 Psychoeducational Groups 53

Element 7 Specialized Service and Support Systems 54

7.1 Comprehensive Coordinated Services 54

7.2 Case Management and Care Coordination 54

7.3 Child Advocacy Roles 56

Element 8 Holistic Perspective of Family-Centered Care 57

8.1 Developmental Issues 57

8.2 Life Beyond Illness Issues 58

8.3 Normalization Issues 59

4 Putting the Practice Recommendations into Action 61

Facility Assessment and Baseline Information 61

Stakeholder Motivation and Commitment 61

Working Groups 63

Identifying and Using Outcomes 64

Barriers to Implementing Family-Centered Care 65

5 Family-Centered Care: Summing It Up 67.

Notes:

"FCC23"--T.p. verso.

Includes bibliographical references (pages 97-119) and index.

ISBN:

1558102108

OCLC:

51936972