Patient participation in palliative care : a voice for the voiceless / edited by Barbara Monroe and David Oliviere.

Format:

Book

Contributor:

Monroe, Barbara (Social work executive)

Oliviere, David

Ellis D. Williams, College 1865, Endowment Fund.

Language:

English

Subjects (All):

Palliative treatment.

Patient participation.

Physical Description:

xii, 206 pages : illustrations ; 22 cm

Place of Publication:

Oxford ; New York : Oxford University Press, 2003.

Summary:

Patient participation and user involvement are central to current thinking about the effective delivery of desired healthcare outcomes. Working with the person who lies behind every patient is core to palliative care. A voice can only become significant when it is listened to and acted upon. With palliative care increasingly addressing the needs of people with a variety of conditions in a variety of settings, as well as with advances in research, technology, and information, the challenge to be a voice for the voiceless' is greater than ever. This book addresses key aspects in the provision of patient-centred palliative care and tracks significant developments in user involvement. It sets the philosophy within the cultural, social, and political context of modern healthcare, particularly addressing issues of quality, standards, education, and bereavement. A key component in the delivery of high quality palliative care is the professional team. Following a discussion of teamwork, five core professions present a critical analysis of their working practices. The book concludes with commentaries from a palliative care user and a bereaved carer. It is often somewhat glibly asserted that the patient is, or should be, at the centre of care. There have been few attempts to examine how to keep him or her there without professional needs and protocols crowding him or her out. This book asks how and why we listen. It focuses on the challenges of how professionals can keep the needs of the patient central in clinical care and how the patient can influence the direction of that care. The book will be of interest to a multi-professional audience in palliative care, particularly practitioners in general and specialist palliative care, specialist nurses, bereavement counsellors, and social workers.

Contents:

Part 1 The role of the patient in palliative care

1 A voice for the voiceless / Dame Cicely Saunders 3

2 The changing National Health Service, user involvement and palliative care / Neil Small 9

3 Developments in user organizations / Jane Bradburn 23

4 Quality issues in palliative and supportive care / Sam H. Ahmedzai, John Hunt 39

5 Education in palliative care / Emma Davie, Bill Noble 62

6 Cultural difference and palliative care / Juan M. Nunez Olarte 74

7 Bereavement care / Marilyn Relf 88

Part 2 Multi-professional perspectives

8 Multi-professional teamwork / Pam Firth 109

9 Palliative medicine / James Gilbert 126

10 Palliative nursing / Mandy Stratford 135

11 Palliative care social work / Lindsey Napier 151

12 Palliative care and chaplaincy / Peter W. Speck 164

13 Palliative care and psychology / Christine Kalus 175

14 Conclusions / Alwyn Lishman 193

15 Conclusion: thoughts of a palliative care user / Fiona Broughton 196.

Notes:

Includes bibliographical references and index.

Local Notes:

Acquired for the Penn Libraries with assistance from the Ellis D. Williams, College 1865, Endowment Fund.

ISBN:

0198515812

OCLC:

53224710