Management of patients with neuromuscular disease / John R. Bach.

Format:

Book

Author/Creator:

Bach, John R., 1950-

Language:

English

Subjects (All):

Neuromuscular diseases--Patients.

Neuromuscular diseases.

Neuromuscular Diseases.

Patient Care.

Ethics, Clinical.

Medical Subjects:

Neuromuscular Diseases.

Patient Care.

Ethics, Clinical.

Physical Description:

xvi, 414 pages : illustrations ; 23 cm

Other Title:

Neuromuscular disease

Place of Publication:

Philadelphia, PA : Hanley & Belfus, [2004]

Summary:

A great majority of people with neuromuscular diseases like muscular dystrophy, ALS, spinal muscular atrophy, myasthenia gravis and post-poliomyelitis continue to be told that they have "terminal illnesses" and are not offered management options that can spare them of cardiopulmonary morbidity and mortality. This book is unique in offering viable management alternatives that result in a patients prolonged survival and enhanced quality of life.

Contents:

Section I The Evaluation and Management Concerns Through All Stages 1

1. Disease Assessment and Evolution 3

2. Medical Therapies and Research 29

3. Nutrition / contributions by Irving I. Haber, D.O., Jill Gaydos, B.S. 37

4. Swallowing and Gastrointestinal Concerns / contributions by Ken Swan, M.D., Marta S. Kazanjian, M.A., SLP, Ann Gulyas, M.A., S.L.P. 51

5. Cardiac Management / Yuka Ishikawa, M.D., contributions by John R. Bach, M.D. 75

Section II The Physical Intervention Stages 105

6. Stage 1: The Ambulatory Stage 107

7. Stage 2: Stage of Loss of Ambulation 125

8. Conventional "End-Stage" Management / contributions by Mr. Ira Holland 155

Section III The Stage of Prolonged Quality Survial (Stage 3) 185

9. The Physiologic Basis of Aiding Respiratory Muscles / contributions by Cees van der Schans, Ph.D. 187

10. Noninvasive Respiratory Muscle Aids: Intervention Goals and Mechanisms of Action / contributions by Barbara Rogers, Angela King, B.S. 211

11. Respiratory Muscle Aids: Patient Evaluation, Respiratory Aid Protocol, and Outcomes 271

12. Pediatric Respiratory Management 309

13. Quality of Life and Ethical Issues 331.

Notes:

Includes bibliographical references (pages 355-397) and index.

ISBN:

1560536047

OCLC:

52953063

Publisher Number:

9781560536048